HRB Clinical Research Facility at UCC - Conference Items

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    A mHealth patient passport for adult Cystic Fibrosis patients
    (Springer Nature Switzerland AG, 2018-08-24) Vagg, Tamara; Shortt, Cathy; Hickey, Claire; Eustace, Joseph A.; Plant, Barry J.; Tabirca, Sabin; Seventh Framework Programme
    Life expectancy for some Cystic Fibrosis (CF) patients is rising and new complications and procedures are predicted. Subsequently there is need for education and management interventions that can benefit CF adults. This paper proposes a CF patient passport to record basic medical information through a smartphone application (app), giving the patient access to their own data. It is anticipated that such an app will be beneficial to patients when travelling abroad and between CF centres. This app is designed by a CF multidisciplinary team to be a lightweight reflection of a current patient file. The passport app is created using PhoneGap so that is can be deployed for both Android and iOS devices. The app is introduced to seven participants as part of a stress test. The app is found to be usable and accessible. The app is now being prepared for a pilot study with adult CF patients.