Exploring user behaviours when providing electronic consent on Health Social Networks: a ‘Just Tick Agree’ approach

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dc.contributor.author Rowan, Wendy
dc.contributor.author O'Connor, Yvonne
dc.contributor.author Lynch, Laura
dc.contributor.author Heavin, Ciara
dc.date.accessioned 2018-02-20T13:24:13Z
dc.date.available 2018-02-20T13:24:13Z
dc.date.issued 2017
dc.identifier.citation Rowan, W., O’Connor, Y., Lynch, L. and Heavin, C. (2017) 'Exploring user behaviours when providing electronic consent on Health Social Networks: A ‘Just Tick Agree’ approach', Procedia Computer Science, 121, pp. 968-975. doi: 10.1016/j.procs.2017.11.125 en
dc.identifier.volume 121
dc.identifier.startpage 968
dc.identifier.endpage 975
dc.identifier.issn 1877-0509
dc.identifier.uri http://hdl.handle.net/10468/5506
dc.identifier.doi 10.1016/j.procs.2017.11.125
dc.description.abstract In an online world, the distinction between public and private is becoming increasingly blurred with rising concerns about the privacy and security of personal health information. The aim of this study is to explore electronic consent (eConsent) on a Health Social Network (HSN) – PatientsLikeMe - to improve both the form and accessibility of contractual information presented to HSN users. Participants registered on this HSN and their interaction/behaviours was observed when agreeing to the site’s Terms and Conditions (T&C’s) and Privacy Policy (PP) documents. Focus group discussions were used to help us understand how and why certain events occurred. Several themes emerged from this data - ‘Just Tick Agree’ phenomenon, perceived societal benefits for the public good, data privacy concerns and emotional drivers towards eConsent. By achieving a deeper understanding of the eConsent process to an HSN, contributions are presented for both theory and practice. We argue that the complex language used for T&C’s and PP statements when simplified would increase user knowledge, awareness and understanding. Furthermore, HSN user behaviours (i.e. ‘Just Tick Agree’) must change when registering on HSNs and, developers of HSNs should enable user choice on registration by changing how users’ control their personal health-related data. en
dc.description.sponsorship Wellcome Trust (CHASM Project Seed Award 201607/Z/16/Z) en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Elsevier Ltd. en
dc.relation.uri https://www.sciencedirect.com/science/article/pii/S187705091732327X
dc.rights © 2017, the Authors. Published by Elsevier B.V. Under a Creative Commons license https://creativecommons.org/licenses/by-nc-nd/4.0/ en
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subject eConsent en
dc.subject Privacy en
dc.subject Health Social Networks en
dc.subject PatientsLikeMe en
dc.title Exploring user behaviours when providing electronic consent on Health Social Networks: a ‘Just Tick Agree’ approach en
dc.type Article (peer-reviewed) en
dc.internal.authorcontactother Ciara Heavin, Business Information Systems, University College Cork, Cork, Ireland. +353-21-490-3000 Email: c.heavin@ucc.ie en
dc.internal.availability Full text available en
dc.description.version Published Version en
dc.internal.rssid 449387443
dc.contributor.funder Wellcome Trust
dc.description.status Peer reviewed en
dc.identifier.journaltitle Procedia Computer Science en
dc.internal.IRISemailaddress c.heavin@ucc.ie en
dc.internal.IRISemailaddress y.oconnor@ucc.ie


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© 2017, the Authors. Published by Elsevier B.V. Under a Creative Commons license https://creativecommons.org/licenses/by-nc-nd/4.0/ Except where otherwise noted, this item's license is described as © 2017, the Authors. Published by Elsevier B.V. Under a Creative Commons license https://creativecommons.org/licenses/by-nc-nd/4.0/
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