Parental and clinician views of consent in neonatal research

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dc.contributor.author O'Shea, Niamh
dc.contributor.author Doran, Kieran
dc.contributor.author Ryan, C. Anthony
dc.contributor.author Dempsey, Eugene M.
dc.date.accessioned 2018-04-05T14:28:08Z
dc.date.available 2018-04-05T14:28:08Z
dc.date.issued 2018-03
dc.identifier.citation O'Shea, N. , Doran, K., Ryan, C. A. and Dempsey, E. M. (2018) 'Parental and clinician views of consent in neonatal research', Irish Medical Journal, 111 (3), 706. Available online: http://imj.ie/parental-and-clinician-views-of-consent-in-neonatal-research/ en
dc.identifier.volume 111
dc.identifier.issued 3
dc.identifier.startpage 706
dc.identifier.issn 0332-3102
dc.identifier.uri http://hdl.handle.net/10468/5743
dc.description.abstract Aim: To determine parental and clinician views of the informed consent process in neonatal research. Methods: A questionnaire-based study on the informed consent process. Two questionnaires were developed and distributed to parents and clinicians over a four-month period. Results: Thirty-four parents (79%) surveyed had consented their baby to a research study. The majority of clinicians (72%) had a preference for antenatal provision of information. A desire to help future babies (97%, n=32) and a belief that their babyâ s healthcare would directly benefit (72%, n=28) were primary reasons for consenting. The majority (76% n=28) of parents were not in favour of a waiver of consent. However twenty clinicians (56%) agreed that a waiver of consent may be appropriate in neonatal research. Thirty-one (86%) clinicians rated GCP training as important. Discussion: Parents are generally supportive of neonatal research. Good clinical practice training is essential for clinicians involved in neonatal research. en
dc.language.iso en en
dc.publisher Irish Medical Organisation en
dc.relation.uri http://imj.ie/parental-and-clinician-views-of-consent-in-neonatal-research/
dc.rights © 2018, Irish Medical Association. All rights reserved. en
dc.subject Clinical article
dc.subject Clinical practice
dc.subject Human experiment
dc.subject Infant
dc.subject Newborn
dc.title Parental and clinician views of consent in neonatal research en
dc.type article en
dc.internal.authorcontactother Eugene Dempsey, Paediatrics & Child Health, University College Cork, Cork, Ireland. +353-21-490-3000 Email: g.dempsey@ucc.ie
dc.date.updated 2018-04-05T14:27:32Z
dc.description.version Published Version
dc.internal.rssid 432684886
dc.contributor.funder Seventh Framework Programme en
dc.contributor.funder Science Foundation Ireland en
dc.description.status Peer reviewed
dc.identifier.journaltitle Irish Medical Journal en
dc.internal.copyrightchecked No !!CORA!!
dc.internal.licenseacceptance Yes
dc.internal.IRISemailaddress g.dempsey@ucc.ie en
dc.relation.project info:eu-repo/grantAgreement/SFI/SFI Research Centres/12/RC/2272/IE/Irish Centre for Fetal and Neonatal Translational Research (INFANT)/
dc.relation.project info:eu-repo/grantAgreement/EC/FP7::SP1::HEALTH/260777/EU/Management of Hypotension In the Preterm Extremely Low Gestational Age Newborn/THE HIP TRIAL


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