Challenges in recruiting participants in a multi-centre study on symptom experiences and self care strategies of bowel symptoms following colo-rectal surgery

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dc.contributor.author Landers, Margaret
dc.contributor.author McCarthy, Geraldine
dc.contributor.author Savage, Eileen
dc.date.accessioned 2012-11-08T11:31:28Z
dc.date.available 2013-07-16T21:06:33Z
dc.date.copyright 2012
dc.date.issued 2012-05
dc.identifier.citation Landers, M., McCarthy G., and Savage E. (2012) 'Challenges in recruiting participants in a multi-centre study on symptom experiences and self care strategies of bowel symptoms following colo-rectal surgery'. Journal of Research in Nursing, 17(5): 497-506. http://dx.doi.org/10.1177/1744987111423189 en
dc.identifier.volume 17 en
dc.identifier.issued 5 en
dc.identifier.startpage 497 en
dc.identifier.endpage 506 en
dc.identifier.issn 1744-9871
dc.identifier.uri http://hdl.handle.net/10468/741
dc.identifier.doi 10.1177/1744987111423189
dc.description.abstract Aim: The purpose of this paper is to present some of the challenges found to be problematic in recruiting individuals following sphincter saving surgery for rectal cancer for a multicentre study. While the focus of the study is on symptom experiences and management of bowel symptoms following colo-rectal surgery, the paper will concentrate solely on the challenges experienced in recruiting a sample for the study. Background Recruitment of an adequate number of participants is a challenge for researchers in any area of research involving patients. Enrolment of patients treated for rectal cancer poses particular challenges because the total population of this group in a given country can be small. The use of multiple centres was required to obtain the required number of participants for the current study. Findings: In multicentre studies, researchers can encounter substantial challenges in obtaining ethical approval, accessing clinical sites and gaining direct access to patients. These challenges are embedded in a convoluted process involving many systems of communication, which can vary from one centre to another. Conclusions: The process of obtaining ethical approval is prolonged in the absence of a central ethical review committee. A review process based on a standard application for researchers seeking ethical approval for multi- centred studies central is necessary. Establishing and maintaining access to clinical sites requires co-operation from many individuals during the development of the proposal and continuing throughout the data collection process. en
dc.description.sponsorship Health Research Board (Cochrane Fellowship) en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Sage Publications en
dc.rights © The Author(s) 2012. Reprints and permissions: sagepub.co.uk/journalsPermissions.nav en
dc.subject Colo-rectal cancer en
dc.subject Multi-centre study en
dc.subject Research access en
dc.subject Ethical approval en
dc.subject Research subject recruitment en
dc.subject Surgery en
dc.subject Evaluation en
dc.subject Colorectal neoplasms en
dc.title Challenges in recruiting participants in a multi-centre study on symptom experiences and self care strategies of bowel symptoms following colo-rectal surgery en
dc.type Article (peer-reviewed) en
dc.internal.authorurl http://research.ucc.ie/profiles/C014/mlanders en
dc.internal.authorcontactother Margaret Landers, School of Nursing and Midwifery, Brookfield Health Sciences Complex, University College Cork, Ireland. E-mail: m.landers@ucc.ie en
dc.internal.availability Full text available en
dc.date.updated 2012-11-06
dc.description.version Accepted Version en
dc.internal.rssid 152263521
dc.contributor.funder Health Research Board en
dc.description.status Peer reviewed en
dc.identifier.journaltitle Journal of Reseach in Nursing en
dc.internal.copyrightchecked No en
dc.internal.licenseacceptance Yes en
dc.internal.placepublication London. en
dc.internal.IRISemailaddress m.landers@ucc.ie en


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