Respite in dementia: an evolutionary concept analysis

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dc.contributor.author O'Shea, Emma
dc.contributor.author Timmons, Suzanne
dc.contributor.author O'Shea, Eamon
dc.contributor.author Fox, Siobhán
dc.contributor.author Irving, Kate
dc.date.accessioned 2019-06-18T11:31:52Z
dc.date.available 2019-06-18T11:31:52Z
dc.date.issued 2017-06-28
dc.identifier.citation O’ Shea, E., Timmons, S., O’ Shea, E., Fox, S. and Irving, K. (2019) 'Respite in Dementia: An Evolutionary Concept Analysis', Dementia, 18(4), pp. 1446-1465. doi: 10.1177/1471301217715325 en
dc.identifier.volume 18 en
dc.identifier.issued 4 en
dc.identifier.startpage 1446 en
dc.identifier.endpage 1465 en
dc.identifier.issn 1471-3012
dc.identifier.uri http://hdl.handle.net/10468/8063
dc.identifier.doi 10.1177/1471301217715325 en
dc.description.abstract Aim: There is a lack of conceptual clarity around ‘respite’ as it relates to people with dementia and their carers. This study provides clarification on the use and meaning of the term and considers the concept in relation to the dominant care paradigm in dementia, i.e. person-centred care. Methods: Rodgers’ (1989) evolutionary framework was employed. A systematic search was conducted on the Pubmed/MedLine, Embase, Cinahl, PsychInfo, Scopus, Web of Science and Cochrane databases (1980–2016, English) with fixed search terms relating to ‘respite’ and ‘dementia’. Papers with primary qualitative data and literature reviews were included. This search was supplemented with snowballing techniques (back/forward searching, generic search engines). Data were analysed thematically, through an iterative process of constant comparison. Results: Respite is understood both as a service that provides a physical break for the carer and as a psychological outcome, i.e. a mental break for the carer, which can be facilitated by formal services, under certain conditions. The conceptual model outlines how client factors (dyadic relations, recognising/accepting need, carer psychosocial issues, restorative occupation, and stigma) and service factors (model/characteristics, care quality, staff expertise, meaningful occupation for people with dementia and communication and support), interact to influence a respite outcome. The key antecedent for a positive respite experience is that the carer perceives that mutual benefit is garnered from service use. Conclusion: The term respite can be interpreted as both a service and an outcome. However, it is clear that ‘respite’, as currently understood, acknowledges the relational experience of the carer only; it is, therefore, potentially damaging to the planning and delivery of person-centred dementia care. We suggest ‘restorative care’ as a potential alternative nomenclature to respite care, thereby highlighting the importance of providing mutual, personalised health and social care services that serve to enhance care relationships rather than diminish them. en
dc.description.sponsorship Health Research Board (SPHeRE/2013/1) en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Sage Publications en
dc.relation.uri https://journals.sagepub.com/doi/abs/10.1177/1471301217715325
dc.rights © The Author(s) 2017. Reprinted by permission of SAGE Publications. The published version of record is available online: https://doi.org/10.1177/1471301217715325 en
dc.subject Respite en
dc.subject Dementia en
dc.subject Caregivers en
dc.subject Person-centred care en
dc.subject Restorative care en
dc.title Respite in dementia: an evolutionary concept analysis en
dc.type Article (peer-reviewed) en
dc.internal.authorcontactother Suzanne Timmons, Clinical Gerontology & Rehabilitation, University College Cork, Cork, Ireland. +353-21-490-3000 Email: s.timmons@ucc.ie en
dc.internal.availability Full text available en
dc.date.updated 2019-06-18T11:23:40Z
dc.description.version Accepted Version en
dc.internal.rssid 489473665
dc.contributor.funder Health Research Board en
dc.description.status Peer reviewed en
dc.identifier.journaltitle Dementia en
dc.internal.copyrightchecked No !!CORA!!
dc.internal.licenseacceptance Yes en
dc.internal.IRISemailaddress s.timmons@ucc.ie en
dc.internal.IRISemailaddress emma.oshea@ucc.ie en


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