Rating experience of ICT-delivered aphasia rehabilitation: co-design of a feedback questionnaire

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dc.contributor.author Kearns, Áine
dc.contributor.author Kelly, Helen
dc.contributor.author Pitt, Ian
dc.date.accessioned 2019-08-14T15:49:45Z
dc.date.available 2019-08-14T15:49:45Z
dc.date.issued 2019-08-06
dc.identifier.citation Kearns, Á., Kelly, H. and Pitt, I. (2019) 'Rating experience of ICT-delivered aphasia rehabilitation: co-design of a feedback questionnaire', Aphasiology, pp. 1-24. doi: 10.1080/02687038.2019.1649913 en
dc.identifier.startpage 1 en
dc.identifier.endpage 24 en
dc.identifier.issn 0268-7038
dc.identifier.uri http://hdl.handle.net/10468/8322
dc.identifier.doi 10.1080/02687038.2019.1649913 en
dc.description.abstract Background: Speech and language therapy can provide beneficial outcomes in post-stroke aphasia rehabilitation, and intensity is a key component of a successful programme. Information and communication technologies (ICT) may offer an option for the provision of intensive rehabilitation but the views of those undertaking this mode of rehabilitation must be considered to ensure motivation and adherence with self-administered rehabilitation. There is no consensus measure for recording feedback from people with aphasia on user experience of ICT-delivered aphasia rehabilitation. This paper reports on the collaborative development of a feedback questionnaire with people with aphasia for people with aphasia. Aims: There are three research aims (i) to develop a questionnaire to facilitate feedback on ICT-delivered aphasia rehabilitation by collaboratively working with people with aphasia in the design process, (ii) to describe the development process and the co-design techniques employed, and (iii) to explore the experiences of co-designers in the development process. Methods & Procedures: Using public patient involvement (PPI) in health research, a co-design process was employed throughout 6 group workshops. Six people with aphasia (43 to 76 years of age) with a range of aphasia severities (Western Aphasia Battery Aphasia Quotient range 24.4–83) engaged in the co-design process. The final product, an online user feedback questionnaire, was developed. Individual exit interviews were carried out with the co-designers after the workshops, and a thematic analysis of the interview data was completed. Outcomes & Results: The final questionnaire provides an outcome measure that investigates: cognitive workload, satisfaction, programme functionality and ease of use, and the level of assistance required when engaging in ICT-delivered aphasia rehabilitation. It is presented as an online survey in an aphasia-accessible format. Following the co-design experience, four themes were identified within the exit interviews: Group Dynamics, Balance of Complexity of Tasks, Reflection on Abilities and Positive Experience. The co-design process provided opportunities for social interaction with other people with aphasia and allowed co-designers to reflect on their own abilities. The workshops were considered accessible and facilitated their engagement in the co-design process. The process was inclusive and the co-designers reported feeling comfortable about contributing in the workshops and this was also noted in their feedback in the individual exit interviews. Conclusion: People with aphasia can, and should, be included in all stages of the aphasia research process and especially in the development and design of evaluation measures for use by people with aphasia. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Taylor & Francis en
dc.relation.uri https://www.tandfonline.com/doi/full/10.1080/02687038.2019.1649913
dc.rights © 2019 Informa UK Limited, trading as Taylor & Francis Group. This is an Accepted Manuscript of an article published by Taylor & Francis Group in Aphasiology on 06 Aug 2019, available online: http://www.tandfonline.com/10.1080/02687038.2019.1649913 en
dc.subject Collaboration en
dc.subject Co-design en
dc.subject Questionnaire en
dc.subject Development; en
dc.subject Aphasia en
dc.subject ICT en
dc.subject Information and communication technologies (ICT) en
dc.subject Speech and language therapy en
dc.subject Rehabilitation en
dc.title Rating experience of ICT-delivered aphasia rehabilitation: co-design of a feedback questionnaire en
dc.type Article (peer-reviewed) en
dc.internal.authorcontactother Helen Kelly, Speech And Hearing Sciences, University College Cork, Cork, Ireland. +353-21-490-3000 Email: helen.kelly@ucc.ie en
dc.internal.availability Full text available en
dc.check.info Access to this article is restricted until 12 months after publication by request of the publisher. en
dc.check.date 2020-08-06
dc.date.updated 2019-08-14T15:40:37Z
dc.description.version Accepted Version en
dc.internal.rssid 496591796
dc.description.status Peer reviewed en
dc.identifier.journaltitle Aphasiology en
dc.internal.copyrightchecked No
dc.internal.licenseacceptance Yes en
dc.internal.IRISemailaddress helen.kelly@ucc.ie en

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