The zebra in the room: an exploration of anticipatory grief in families of children with mitochondrial disease and the role of social work

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dc.contributor.advisor Shore, Caroline en
dc.contributor.author Meehan, Tammy
dc.contributor.other Mito Families Ireland
dc.contributor.role Civil Society Organization en
dc.date.accessioned 2019-11-13T13:17:41Z
dc.date.available 2019-11-13T13:17:41Z
dc.date.issued 2017
dc.identifier.citation Meehan, T. (2017) The zebra in the room: an exploration of anticipatory grief in families of children with mitochondrial disease and the role of social work. Cork: Community-Academic Research Links, University College Cork. en
dc.identifier.endpage 73 en
dc.identifier.uri http://hdl.handle.net/10468/9001
dc.description.abstract This study researched the concept of anticipatory grief and used primary research to explore its affects in families of children with Mitochondrial Disease. From there it looked at what the role of social work might be in this context. In doing so, this paper considered the recommendations of the National Rare Disease Plan 2014-2018, as well as literature from foremost academics in the area of grief such as Doka, Rando and Cadell. Combining this theory with the findings of a survey completed by twenty three members of Mito Families Ireland, informed by a discussion forum, the research found that the lived experiences of these participants largely correlate to the current literature. Based on this, a number of recommendations have been made which hope to inform both policy and social work practice going forward. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Community-Academic Research Links, University College Cork en
dc.relation.ispartofseries CARL Research Reports;65
dc.relation.uri https://www.ucc.ie/en/scishop/rr/
dc.rights ©2017, Tammy Meehan. en
dc.subject Anticipatory grief en
dc.subject Children with mitochondrial disease en
dc.subject Role of social work en
dc.title The zebra in the room: an exploration of anticipatory grief in families of children with mitochondrial disease and the role of social work en
dc.type Report en
dc.type.qualificationname Masters of Social Work, Year 2 en
dc.internal.availability Full text available en
dc.description.version Published Version en
dc.description.status Not peer reviewed en
dc.internal.placepublication Cork en


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