An exploration of care-burden experienced by older caregivers of adults with intellectual disabilities, in Ireland.

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dc.contributor.author Egan, Caroline
dc.contributor.author Dalton, Caroline
dc.date.accessioned 2019-06-17T15:00:20Z
dc.date.available 2019-06-17T15:00:20Z
dc.date.issued 2019-05-30
dc.identifier.citation Egan, C. and Dalton, C. T. (2019) 'An exploration of care-burden experienced by older caregivers of adults with intellectual disabilities in Ireland', British Journal of Learning Disabilities, doi: 10.1111/bld.12273 en
dc.identifier.startpage 1 en
dc.identifier.endpage 7 en
dc.identifier.issn 1354-4187
dc.identifier.uri http://hdl.handle.net/10468/8059
dc.identifier.doi 10.1111/bld.12273 en
dc.description.abstract Background: People with intellectual disabilities are experiencing increased longevity, and in parallel, their family caregivers are also ageing. The literature identifies that these caregivers are at risk of burden. The aim of this study was to measure the level of caregiver burden among older carers of adults with intellectual disabilities in an Irish sample and to analyse the effect of socio‐demographic factors upon experiences of caregiver burden. Materials and Methods: Thirty caregivers completed a survey questionnaire. Data were collected based upon participants’ self‐reports of burden using the Zarit Burden Interview (ZBI) and a socio‐demographic questionnaire. Data were analysed using SPSS version 24. Results: Over 57% of carers indicated a mild‐to‐moderate level of burden. Analysis indicated that younger caregivers experience significantly higher levels of burden, when compared to older caregivers. Conclusions: This study contributes to our understanding of burden among an Irish population of older caregivers supporting an adult with an intellectual disability. It identified that carers do experience burden. The importance of proactive assessments and supports for these caregivers was revealed. This study highlights a lack of Irish research in this area and may pave the way for future research which could build upon its findings. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Wiley en
dc.relation.uri https://onlinelibrary.wiley.com/doi/full/10.1111/bld.12273
dc.rights © 2019 John Wiley & Sons Ltd. This is the peer reviewed version of the following article: Egan, C, Dalton, CT. An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland. Br J Learn Disabil. 2019, which has been published in final form at https://doi.org/10.1111/bld.12273. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. en
dc.subject Burden en
dc.subject Caregivers en
dc.subject Intellectual disabilities en
dc.subject Ireland en
dc.subject Older adults en
dc.title An exploration of care-burden experienced by older caregivers of adults with intellectual disabilities, in Ireland. en
dc.type Article (peer-reviewed) en
dc.internal.authorcontactother Caroline Egan, Nursing & Midwifery, University College Cork, Cork, Ireland. +353-21-490-3000 Email: caroline.egan@ucc.ie en
dc.internal.availability Full text available en
dc.check.info Access to this article is restricted until 12 months after publication by request of the publisher en
dc.check.date 2020-05-30
dc.date.updated 2019-06-17T14:53:18Z
dc.description.version Accepted Version en
dc.internal.rssid 488739116
dc.description.status Peer reviewed en
dc.identifier.journaltitle British Journal of Learning Disabilities en
dc.internal.copyrightchecked No !!CORA!!
dc.internal.licenseacceptance Yes en
dc.internal.IRISemailaddress caroline.egan@ucc.ie en
dc.internal.IRISemailaddress c.doconnor@ucc.ie en
dc.internal.bibliocheck In Press. Update citation, add vol. issue, update page nos. en


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