APPEAL-2: A pan-European qualitative study to explore the burden of peanut-allergic children, teenagers and their caregivers

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dc.contributor.authorDunnGalvin, Audrey
dc.contributor.authorGallop, Katy
dc.contributor.authorAcaster, Sarah
dc.contributor.authorTimmermans, Frans
dc.contributor.authorRegent, Lynne
dc.contributor.authorSchnadt, Sabine
dc.contributor.authorPodestà, Marcia
dc.contributor.authorSánchez, Angel
dc.contributor.authorRyan, Robert
dc.contributor.authorCouratier, Pascale
dc.contributor.authorFeeney, Mary
dc.contributor.authorHjorth, Betina
dc.contributor.authorFisher, Helen R.
dc.contributor.authorBlumchen, Katharina
dc.contributor.authorVereda, Andrea
dc.contributor.authorFernández-Rivas, Montserrat
dc.date.accessioned2022-09-13T14:51:20Z
dc.date.available2022-09-13T14:51:20Z
dc.date.issued2020-08-05
dc.date.updated2022-09-13T14:37:30Z
dc.description.abstractBackground: Allergy to Peanuts ImPacting Emotions And Life (APPEAL-1) was a recent European multi-country questionnaire survey that highlighted the negative impacts of peanut allergy (PA) on quality of life. A follow-on qualitative study, APPEAL-2, further assessed the burden of PA and associated coping strategies through semi-structured interviews. Objective: To gain qualitative insight on the strategies used to cope with and manage PA and the impact of these strategies on the quality of life of children, teenagers and caregivers. Methods: This cross-sectional qualitative study was conducted in eight European countries: the United Kingdom, France, Germany, Ireland, Spain, Italy, Denmark and the Netherlands. Semi-structured interviews were conducted with children (aged 8-12 years) and teenagers (aged 13-17 years) with self-/proxy-reported moderate or severe PA and with parents/caregivers of children or teenagers (aged 4-17 years) with moderate or severe PA. Data were analysed using thematic analysis; data saturation was assessed. Two conceptual models were developed to illustrate the impacts of PA and coping strategies used to manage them for (a) individuals with PA and (b) parents/caregivers of children with PA. Results: 107 participants were interviewed: 24 children, 39 teenagers and 44 caregivers. The conceptual models illustrated themes related to coping and control, driven by the fear of PA reactions, and the associated emotional, social, relationship and work impacts. Factors moderating these impacts included social attitudes and support, child-caregiver relationship and coping strategies used. Conclusions and Clinical Relevance: The APPEAL-2 results substantiate the findings of APPEAL-1; the results also suggest that the severity of experience with PA may not correlate with perception of its overall burden and show variable impacts by country.en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationDunnGalvin, A., Gallop, K., Acaster, S., Timmermans, F., Regent, L., Schnadt, S., Podestà, Marcia; Sánchez, A., Ryan, R., Couratier, P., Feeney, M., Hjorth, B., Fisher, H. R., Blumchen, K., Vereda, A., Fernández-Rivas, M. (2020) 'APPEAL-2: A pan-European qualitative study to explore the burden of peanut-allergic children, teenagers and their caregivers', Clinical and Experimental Allergy, 50(11), pp. 1238-1248. doi: 10.1111/cea.13719en
dc.identifier.doi10.1111/cea.13719en
dc.identifier.eissn1365-2222
dc.identifier.endpage1248en
dc.identifier.issn0954-7894
dc.identifier.issued11en
dc.identifier.journaltitleClinical and Experimental Allergyen
dc.identifier.startpage1238en
dc.identifier.urihttps://hdl.handle.net/10468/13597
dc.identifier.volume50en
dc.language.isoenen
dc.publisherJohn Wiley & Sons, Inc.en
dc.rights© 2020, the Authors. Clinical & Experimental Allergy published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en
dc.subjectBurdenen
dc.subjectConceptual modelsen
dc.subjectFood allergyen
dc.subjectPaediatricsen
dc.subjectPeanut allergyen
dc.subjectQuality of lifeen
dc.subject~Paediatrics and Child Health - Journal Articles~en
dc.titleAPPEAL-2: A pan-European qualitative study to explore the burden of peanut-allergic children, teenagers and their caregiversen
dc.typeArticle (peer-reviewed)en
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