The evil side of sharing personal health information online

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dc.contributor.authorO'Connor, Yvonne
dc.contributor.authorRowan, Wendy
dc.contributor.authorLynch, Laura
dc.contributor.authorHeavin, Ciara
dc.contributor.funderWellcome Trusten
dc.date.accessioned2018-07-10T09:08:42Z
dc.date.available2018-07-10T09:08:42Z
dc.date.issued2017-08
dc.date.updated2018-07-10T08:55:17Z
dc.description.abstractWhen joining a social network users are typically asked to register and supply their personal/private information. As part of the registration process, users must confirm that they have read the terms and conditions of site use, as well as the privacy policy for that particular social network. Do people actually read these documents, and do they really understand what they are consenting to? When it comes to sharing personal health conditions with others online, it is worth considering who will have access to this valuable, sensitive data and how it will be used in the future. This research aims to improve the form and accessibility of contractual information presented to users of Health Social Networks (HSNs), by looking at alternative ways to engage and communicate these details on registration. Taking a mixed methods approach, this research observes registration behaviours and questions users on their engagement with eConsent through HSNs. Our aim is to elucidate the challenges, risks and potential dangers associated with sharing personal health information (PHI) using HSNs. This research proposes a list of guidelines to better support userâ s decision making needs when choosing to register and providing personal health information to HSNs.en
dc.description.sponsorshipCHASM Project Seed Award 201607/Z/16/Z.en
dc.description.statusPeer revieweden
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationO' Connor, Y., Rowan, W., Lynch, L., and Heavin, C. (2017) ‘The evil side of sharing personal health information online’, AMCIS 2017: 23rd Americas Conference on Information Systems, Boston, United States, 10 -12 August. Available online: http://aisel.aisnet.org/amcis2017/Healthcare/Presentations/7/en
dc.identifier.endpage5en
dc.identifier.journaltitle23rd Americas Conference on Information Systems (AMCIS 2017)en
dc.identifier.startpage1en
dc.identifier.urihttps://hdl.handle.net/10468/6442
dc.language.isoenen
dc.publisherAssociation for Information Systems (AIS)en
dc.relation.ispartof23rd Americas Conference on Information Systems (AMCIS 2017)
dc.relation.projectinfo:eu-repo/grantAgreement/WT/Medical Humanities/201607//Consenting HeAlth related data through Social Media (CHASM Project)/en
dc.relation.urihttp://aisel.aisnet.org/amcis2017/Healthcare/Presentations/7/
dc.rights© 2017 by Association for Information Systems (AIS).en
dc.subjectHealth social networks (HSNs)en
dc.subjectConsenten
dc.subjectPrivacyen
dc.subjecteConsenten
dc.subjectPersonal health infrmationen
dc.subjectData privacyen
dc.subjectData protectionen
dc.subjectOnline privacyen
dc.subjectDigital informed consenten
dc.subjectHealth informationen
dc.titleThe evil side of sharing personal health information onlineen
dc.typeConference itemen
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