Longitudinal associations between family factors and the neurodevelopmental and psychosocial outcomes of children with congenital heart disease: A systematic review

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dc.contributor.authorMcCusker, Chris
dc.contributor.authorPhillips, Lucy
dc.contributor.authorMurphy, Stephanie
dc.contributor.funderHealth Service Executive
dc.date.accessioned2026-09-09T10:54:01Z
dc.date.available2026-09-09T10:54:01Z
dc.date.issued2026-07-31
dc.description.abstractFamily factors have been gaining increased attention in understanding adverse neurodevelopmental and psychosocial outcomes for children with congenital heart disease (CHD). To clarify relevance, we undertook a systematic review of only longitudinal studies which assessed such associations. Comparisons with the contribution of disease/surgical factors were also made where included studies considered such. We included longitudinal studies which assessed dynamic family factors (e.g. parent mental health, attachment, family functioning) and later child outcomes. Searches were conducted across CINAHL, Medline-Pubmed, PsychInfo and SCOPUS Web of Science. The NIH Quality Assessment Tool was used to evaluate study quality and risk of bias. Eighteen studies, utilizing data from 11 study samples and 2109 participants, met inclusion criteria. These studies included samples from infancy, with follow-up periods stretching into young adulthood, and with various degrees of CHD severity. The quality of studies was “good” to “fair”, with key limitations of attrition and limited sociocultural diversity in samples. Findings suggested that family factors predicted later child psychosocial outcomes and more consistently than severity of disease indicators. This contrasted with a much smaller number of studies examining family factors and child neurodevelopmental outcomes, where no reliable conclusions could be reached. Findings highlight the importance of screening and family focused interventions for this population.en
dc.description.sponsorshipHealth Service Executive
dc.description.versionPublished Version
dc.format.extent12
dc.format.mimetypeapplication/pdfen
dc.identifier.articleid106627
dc.identifier.authororcidMcCusker, Chris§0000-0003-1958-0415
dc.identifier.authororcidPhillips, Lucy
dc.identifier.authororcidMurphy, Stephanie§0000-0002-0256-9992
dc.identifier.citationMcCusker, C, Phillips, L & Murphy, S 2026, 'Longitudinal associations between family factors and the neurodevelopmental and psychosocial outcomes of children with congenital heart disease: A systematic review', Early Human Development, vol. 222, 106627, pp. 1-12. https://doi.org/10.1016/j.earlhumdev.2026.106627
dc.identifier.doi10.1016/j.earlhumdev.2026.106627
dc.identifier.endpage12
dc.identifier.issn0378-3782
dc.identifier.otherORCID: /0000-0003-1958-0415/work/226277356
dc.identifier.otherORCID: /0000-0002-0256-9992/work/227877873
dc.identifier.startpage1
dc.identifier.urihttps://hdl.handle.net/10468/19203
dc.identifier.volume222
dc.language.isoen
dc.publisherElsevier Ireland Ltd
dc.relation.urihttps://www.scopus.com/pages/publications/105046176328
dc.rights© 2026, the Authors. Published by Elsevier B.V. This is an open access article under the CC BY license ( http://creativecommons.org/licenses/by/4.0/ ).
dc.rights.accessrightsopen access
dc.rights.licensenameAttribution 4.0 International
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.statusPeer reviewed
dc.subjectChild outcomes
dc.subjectCongenital heart disease
dc.subjectFamily processes
dc.subject[AppliedPsychology]
dc.titleLongitudinal associations between family factors and the neurodevelopmental and psychosocial outcomes of children with congenital heart disease: A systematic reviewen
dc.typeReview
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