The development of a health communication passport for stroke

Simple item page
dc.check.chapterOfThesisControlled acess for 3 years to facilitate publicationsen
dc.check.date2028-05-31
dc.check.infoControlled Access
dc.contributor.advisorKelly, Helen
dc.contributor.advisorO'Toole, Ciara
dc.contributor.authorO'Leary, Norma
dc.date.accessioned2025-02-12T15:45:07Z
dc.date.available2025-02-12T15:45:07Z
dc.date.issued2024
dc.date.submitted2024
dc.descriptionControlled Access
dc.description.abstractIntroduction: The Irish National Stroke Strategy (2022-2027) (HSE, 2022) has recommended the introduction of a Stroke Passport. However, the perspectives of stakeholders on the purpose, design, format, and content of a stroke passport are not yet known. Moreover, given that a Stroke Passport can be categorised as a complex intervention, characterised by multiple interacting components and the need to modify established practices, it is crucial to examine current practices related to information provision across the stroke care continuum. Consequently, this study also seeks to investigate the methods currently employed by Healthcare Professionals (HCPs) to provide information to stroke patients and their families or caregivers. Additionally, it aims to identify the barriers and facilitators influencing information provision throughout the stroke care continuum from the perspective of HCPs. Methods: The study took place over two phases. A cross-sectional online survey initially explored the perceptions of HCPs working in stroke care in Ireland and UK. Focus groups interviews were then conducted with HCPs who worked in an acute stroke ward and/or Early Stroke Discharge (ESD) team. Phase one quantitative data was analysed using descriptive and inferential statistics. Qualitative survey data was analysed using content analysis mapped onto the Theoretical Domains Framework (TDF). Phase two interview data were analysed using Braun & Clark’s (2022) six-step Thematic Analysis framework. Results: The survey was completed by 111 HCPs (64% Ireland:36% UK). Wide variation in methods and terminology was noted. Differences across countries was observed relating to opinions about patient and family satisfaction with current information provision. There was consensus that information be provided at multiple care pathway timepoints and be available in both digital and paper formats. Phase two consisted of 22 HCPs who took part in one of the four focus groups (acute stroke ward n=19, ESD n=3). Participants included: Allied Health Professionals (n=10), Nursing staff (n=6), Medical doctors (n=3), Pharmacy (n=1), Psychology (n=1) and Medical Social Work (n=1). Findings suggest that a Stroke Passport, as a central source of information, has the potential to empower patients and family/caregivers. Participants offered suggestions regarding the ideal content, format, and timing of the provision of information. There was a general agreement that a Stroke Passport should be digital rather than paper based. They suggested that issues relating to data protection, longevity of the Stroke Passport, and user buy-in are more challenging with a paper version. Key factors were identified that pose potential obstacles to implementation. This includes a lack of digital infrastructure and the ability of Healthcare Information Systems (HIS) to communicate across systems (interoperability). In addition, the identification of the HCP(s) who would take responsibility for updating the Stroke Passport beyond acute care was considered a necessary component to successful implementation. Conclusion: The provision of a resource such as a Stroke Passport was considered an important asset to patient care. Our findings emphasise the critical role of co-design in its development to better address the complex needs of stroke patients, improving outcomes, satisfaction, and engagement. However, greater attention to addressing current gaps in our stroke healthcare system, particularly digital infrastructure, and interoperability, during the transition from hospital to home is required prior to implementation of a Stroke Passport.en
dc.description.statusNot peer revieweden
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationO'Leary, N. 2024. The development of a health communication passport for stroke. MRes Thesis, University College Cork.
dc.identifier.endpage275
dc.identifier.urihttps://hdl.handle.net/10468/17029
dc.language.isoenen
dc.publisherUniversity College Corken
dc.rights© 2024, Norma O' Leary.
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectStrokeen
dc.subjectStroke Passporten
dc.subjectInformation provisionen
dc.titleThe development of a health communication passport for stroke
dc.typeMasters thesis (Research)en
dc.type.qualificationlevelMasters
dc.type.qualificationnameMRes - Master of Research
Files
Original bundle
Now showing 1 - 2 of 2
Thumbnail Image
Name:
OLearyN_MSc2024.pdf
Size:
4.28 MB
Format:
Adobe Portable Document Format
Description:
Full Text E-thesis
Thumbnail Image
Name:
OLearyN_MSc2024_Submission for examination form.pdf
Size:
409.63 KB
Format:
Adobe Portable Document Format
License bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
license.txt
Size:
5.2 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Research Theses
College of Medicine and Health - Masters by Research Theses
Speech and Hearing Sciences - Masters by Research Theses