Care and design: an ethnography of mutual recognition in the context of advanced dementia

dc.contributor.authorFoley, Sarah
dc.contributor.authorPantidi, Nadia
dc.contributor.authorMcCarthy, John
dc.contributor.funderIrish Research Councilen
dc.date.accessioned2019-07-25T11:20:41Z
dc.date.available2019-07-25T11:20:41Z
dc.date.issued2019-05
dc.date.updated2019-07-25T11:12:04Z
dc.description.abstractWhile there have been considerable developments in designing for dementia within HCI, there is still a lack of empirical understanding of the experience of people with advanced dementia and the ways in which design can support and enrich their lives. In this paper, we present our findings from a long-term ethnographic study, which aimed to gain an understanding of their lived experience and inform design practices for and with people with advanced dementia in residential care. We present our findings using the social theory of recognition as an analytic lens to account for recognition in practice and its challenges in care and research. We discuss how we, as the HCI community, can pragmatically engage with people with advanced dementia and propose a set of considerations for those who wish to design for and with the values of recognition theory to promote collaboration, agency and social identity in advanced dementia care.en
dc.description.sponsorshipIrish Research Council (GOIPG/2016/1470)en
dc.description.statusPeer revieweden
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.articleid610en
dc.identifier.citationFoley, S., Pantidi, N. and McCarthy, J. (2019) 'Care and design: an ethnography of mutual recognition in the context of advanced dementia', CHI 2019: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, Glasgow, Scotland, 4-9 May, Paper 610 (13pp). doi: 10.1145/3290605.3300840en
dc.identifier.doi10.1145/3290605.3300840en
dc.identifier.endpage15en
dc.identifier.isbn978-1-4503-5970-2
dc.identifier.startpage1en
dc.identifier.urihttps://hdl.handle.net/10468/8249
dc.language.isoenen
dc.publisherAssociation for Computing Machinery (ACM)en
dc.relation.ispartofCHI 2019: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems
dc.relation.urihttps://chi2019.acm.org/
dc.rights© 2019, Association for Computing Machinery. This is the author's version of the work. It is posted here for your personal use. Not for redistribution. The definitive Version of Record was published in CHI 2019: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems: https://dx.doi.org/10.1145/3290605.3300840en
dc.subjectDementiaen
dc.subjectEthnographyen
dc.subjectRecognition theoryen
dc.subjectExperience-centered designen
dc.titleCare and design: an ethnography of mutual recognition in the context of advanced dementiaen
dc.typeConference itemen
Files
Original bundle
Now showing 1 - 1 of 1
Loading...
Thumbnail Image
Name:
CARE_and_DESIGN_CHI2019_preprint.pdf
Size:
307.39 KB
Format:
Adobe Portable Document Format
Description:
Accepted Version
License bundle
Now showing 1 - 1 of 1
Loading...
Thumbnail Image
Name:
license.txt
Size:
2.71 KB
Format:
Item-specific license agreed upon to submission
Description: