Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey

Simple item page
dc.contributor.authorKhaleva, Ekaterina
dc.contributor.authorKnibb, Rebecca
dc.contributor.authorDunnGalvin, Audrey
dc.contributor.authorVazquez-Ortiz, Marta
dc.contributor.authorComberiati, Pasquale
dc.contributor.authorAlviani, Cherry
dc.contributor.authorGarriga-Baraut, Teresa
dc.contributor.authorGowland, M. Hazel
dc.contributor.authorGore, Claudia
dc.contributor.authorAngier, Elizabeth
dc.contributor.authorBlumchen, Katharina
dc.contributor.authorDuca, Bettina
dc.contributor.authorHox, Valérie
dc.contributor.authorJensen, Britt
dc.contributor.authorMortz, Charlotte G.
dc.contributor.authorPite, Helena
dc.contributor.authorPfaar, Oliver
dc.contributor.authorSantos, Alexandra F.
dc.contributor.authorSanchez-Garcia, Silvia
dc.contributor.authorTimmermans, Frans
dc.contributor.authorRoberts, Graham
dc.contributor.funderAsthma UKen
dc.contributor.funderNational Institute for Health Researchen
dc.date.accessioned2021-10-05T09:21:04Z
dc.date.available2021-10-05T09:21:04Z
dc.date.issued2021-09-26
dc.date.updated2021-10-05T08:55:48Z
dc.description.abstractBackground: The European Academy of Allergy and Clinical Immunology has developed a guideline to provide evidence-based recommendations for healthcare professionals to support the transitional care of adolescents and young adults (AYA) with allergy and/or asthma. The goal of this work was to ensure that the draft recommendations are also important for patients. Methods: We surveyed patients aged 11-25 years with allergy and/or asthma and their parents across Europe between 17th February and 16th March 2020. The multilingual survey was distributed through national allergy and asthma patient organisations in Europe as well as through social media. Results: A total of 1210 responses from 24 European countries were collected. There were 415 (34.3%) AYA and 795 (65.7%) parents. The majority of AYA (72.3%) and parents (81.9%) were female. Patients had a history of asthma (61.1%), allergic rhinoconjunctivitis (54.1%), food allergy (53.8%), atopic eczema (42.6%), and anaphylaxis (28.8%). All recommendations achieved the median score of either ‘important’ or ‘very important’. The least supported recommendations were the use of joint clinics with both paediatric and adult physicians attending and the use of web-based or mobile technologies for communication with the AYA. The most supported recommendation was checking that the AYA is knowledgeable and compliant with their prescribed medication. Qualitative analysis revealed conditional approval for some recommendations. Conclusions: There was agreement from patients and parents on the importance of the draft recommendations on transitional care for adolescents and young adults with allergy and/or asthma and their parents. The recommendations now need to be implemented into clinical practice across Europe.en
dc.description.statusPeer revieweden
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationKhaleva, E., Knibb, R., DunnGalvin, A., Vazquez-Ortiz, M., Comberiati, P., Alviani, C., Garriga-Baraut, T., Gowland, M. H., Gore, C., Angier, E., Blumchen, K., Duca, B., Hox, V., Jensen, B., Mortz, C. G., Pite, H., Pfaar, O., Santos, A. F., Sanchez-Garcia, S., Timmermans, F. and Roberts, G. (2021) 'Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey', Allergy. doi: 10.1111/all.15109en
dc.identifier.doi10.1111/all.15109en
dc.identifier.eissn1398-9995
dc.identifier.issn0105-4538
dc.identifier.journaltitleAllergyen
dc.identifier.urihttps://hdl.handle.net/10468/12048
dc.language.isoenen
dc.publisherJohn Wiley & Sons, Inc.en
dc.rights© 2021, John Wiley & Sons, Inc. This is the peer reviewed version of the following article: Khaleva, E., Knibb, R., DunnGalvin, A., Vazquez-Ortiz, M., Comberiati, P., Alviani, C., Garriga-Baraut, T., Gowland, M. H., Gore, C., Angier, E., Blumchen, K., Duca, B., Hox, V., Jensen, B., Mortz, C. G., Pite, H., Pfaar, O., Santos, A. F., Sanchez-Garcia, S., Timmermans, F. and Roberts, G. (2021) 'Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey', Allergy, doi: 10.1111/all.15109, which has been published in final form at https://doi.org/10.1111/all.15109. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.en
dc.subjectAdolescentsen
dc.subjectAllergyen
dc.subjectAsthmaen
dc.subjectTransitionen
dc.subjectSurveyen
dc.subjectYoung adultsen
dc.titlePerceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European surveyen
dc.typeArticle (peer-reviewed)en
Files
Original bundle
Now showing 1 - 2 of 2
Thumbnail Image
Name:
all.15109.pdf
Size:
10.11 MB
Format:
Adobe Portable Document Format
Description:
Accepted Version
Download
Thumbnail Image
Name:
all15109-sup-0001-supinfo.pdf
Size:
746.39 KB
Format:
Adobe Portable Document Format
Description:
Supporting Information
Download
License bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
license.txt
Size:
2.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Applied Psychology - Journal Articles