A qualitative analysis of parental coping with an early diagnosis of hearing loss in Ireland

dc.check.date2021-01-11T09:44:57Z
dc.check.embargoformatE-thesis on CORA onlyen
dc.check.entireThesisEntire Thesis Restricted
dc.check.infoRestricted to everyone for five yearsen
dc.check.opt-outNot applicableen
dc.check.reasonThis thesis is due for publication or the author is actively seeking to publish this materialen
dc.contributor.advisorFourie, Robert Jamesen
dc.contributor.advisorJackson, Jeanneen
dc.contributor.authorKenny, Meabh
dc.contributor.funderUniversity College Corken
dc.date.accessioned2016-01-13T09:44:57Z
dc.date.issued2016
dc.date.submitted2016
dc.description.abstractThe recent implementation of Universal Neonatal Hearing Screening (UNHS) in all 19 maternity hospitals across Ireland has precipitated early identification of paediatric hearing loss in an Irish context. This qualitative, grounded theory study centres on the issue of parental coping as families receive and respond to (what is typically) an unexpected diagnosis of hearing loss in their newborn baby. Parental wellbeing is of particular concern as the diagnosis occurs in the context of recovery from birth and at a time when the parent-child relationship is being established. As the vast majority of children with a hearing loss are born into hearing families with no prior history of deafness, parents generally have had little exposure to childhood hearing loss and often experience acute emotional vulnerability as they respond to the diagnosis. The researcher conducted in-depth interviews primarily with parents (and to a lesser extent with professionals), as well as a follow-up postal questionnaire for parents. Through a grounded theory analysis of data, the researcher subsequently fashioned a four-stage model depicting the parental journey of receiving and coping with a diagnosis. The four stages (entitled Anticipating, Confirming, Adjusting and Normalising) are differentiated by the chronology of service intervention and defined by the overarching parental experience. Far from representing a homogenous trajectory, this four-stage model is multifaceted and captures a wide diversity of parental experiences ranging from acute distress to resilient hopefulnessen
dc.description.sponsorshipUniversity College Cork (UCC Department of Medicine and Health)en
dc.description.statusNot peer revieweden
dc.description.versionAccepted Version
dc.format.mimetypeapplication/pdfen
dc.identifier.citationKenny, M. 2016. A qualitative analysis of parental coping with an early diagnosis of hearing loss in Ireland. PhD Thesis, University College Cork.en
dc.identifier.endpage314
dc.identifier.urihttps://hdl.handle.net/10468/2181
dc.language.isoenen
dc.publisherUniversity College Corken
dc.rights© 2016, Meabh Kenny.en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/en
dc.subjectParenten
dc.subjectMotheren
dc.subjectFatheren
dc.subjectCopingen
dc.subjectGriefen
dc.subjectLossen
dc.subjectTrajectoryen
dc.subjectDelivering a diagnosisen
dc.subjectResilienceen
dc.subjectHopeen
dc.subjectChilden
dc.subjectChildhooden
dc.subjectHearing lossen
dc.subjectDeafen
dc.subjectInfanten
dc.subjectPaediatricen
dc.subjectHearing impairmenten
dc.thesis.opt-outfalse
dc.titleA qualitative analysis of parental coping with an early diagnosis of hearing loss in Irelanden
dc.typeDoctoral thesisen
dc.type.qualificationlevelDoctoralen
dc.type.qualificationnamePhD (Medicine and Health)en
ucc.workflow.supervisorj.jackson@ucc.ie
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