Multiple stakeholders' perspectives on respite service access for people with dementia and their carers

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dc.check.date2020-07-12
dc.check.infoAccess to this article is restricted until 12 months after publication by request of the publisher.en
dc.contributor.authorO'Shea, Emma
dc.contributor.authorTimmons, Suzanne
dc.contributor.authorO'Shea, Eamon
dc.contributor.authorIrving, Kate
dc.contributor.funderHealth Research Boarden
dc.date.accessioned2019-11-26T13:00:01Z
dc.date.available2019-11-26T13:00:01Z
dc.date.issued2019-07-12
dc.date.updated2019-11-26T12:37:05Z
dc.description.abstractBackground and Objectives: People with dementia and carers do not always access respite services in a timely manner, or in some cases, at all. Although carers’ perspectives on respite access have been explored, other stakeholder perspectives, especially providers and people with dementia, are underrepresented in the existing literature. The aim of this study was to synthesize multiple stakeholders’ perspectives, including people with dementia, on accessing respite services in the context of dementia. Research Design and Methods: Purposive maximum variation sampling was used. Semi-structured interviews were conducted with 35 key stakeholders, including people with dementia (n = 6), carers (n = 9), respite frontline staff (n = 4), respite managers (n = 8), primary care professionals (n = 3), and policy-makers/academics (n = 5). The process of consent is outlined. Data were interpreted inductively using thematic analysis. Reflexivity was considered throughout the research process. Results: Three themes (“Service Acceptability,” “Navigational Knowledge and Skills,” “Constructing and Adjudicating Respite Need”) were identified that relate to how access to respite services is negotiated between service providers and dyads. Discussion and Implications: A number of the findings support previous research; however, novel findings discussed relating to the access negotiation process include (a) the ambiguous legitimacy of respite needs, in a system configured to deliver a biomedical model of care and which considers nonmedical care as a family responsibility, and (b) the constraining effects of disparate conceptualizations of “respite” between carers and providers. Future research should interrogate the appropriate boundaries of public responsibility in relation to respite service planning/delivery for dementia, with particular reference to client preferences for community and in-home provision.en
dc.description.sponsorshipHealth Research Board (SPHeRE/2013/1)en
dc.description.statusPeer revieweden
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationO'Shea, E., Timmons, S., O'Shea, E. and Irving, K. (2019) 'Multiple stakeholders' perspectives on respite service access for people with dementia and their carers', The Gerontologist, 59(5), pp. e490-e500. doi: 10.1093/geront/gnz095en
dc.identifier.doi10.1093/geront/gnz095en
dc.identifier.eissn1758-5341
dc.identifier.endpagee500en
dc.identifier.issn0016-9013
dc.identifier.issued5en
dc.identifier.journaltitleThe Gerontologisten
dc.identifier.startpagee490en
dc.identifier.urihttps://hdl.handle.net/10468/9257
dc.identifier.volume59en
dc.language.isoenen
dc.publisherOxford University Press on behalf of the Gerontological Society of Americaen
dc.rights© 2019, the Authors. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. This is a pre-copyedited, author-produced PDF of an article accepted for publication in The Gerontologist following peer review. The version of record, O'Shea, E., Timmons, S., O'Shea, E. and Irving, K. (2019) 'Multiple stakeholders' perspectives on respite service access for people with dementia and their carers', Gerontologist, 59(5), pp. e490-e500, doi: 10.1093/geront/gnz095 is available online at: https://doi.org/10.1093/geront/gnz095en
dc.subjectInformalen
dc.subjectAdult day careen
dc.subjectAccess to and utilization of servicesen
dc.subjectCaregivingen
dc.titleMultiple stakeholders' perspectives on respite service access for people with dementia and their carersen
dc.typeArticle (peer-reviewed)en
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