A qualitative literature review of how hearing codas navigate deafness stigma

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2026-08-07
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O'Connell, Noel
Napier, Jemina
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Abstract
The theoretical contexts of stigma have rarely been applied to a study of the experiences of hearing children of deaf adults (Codas), nor to the ways they respond to parental stigmatization and the efforts they take to protect their parents from these stressors. The wellbeing of Coda children, young people and adults is known to be challenged by discrimination and social exclusion arising from deaf-related stigmatization. It is therefore imperative that these are addressed appropriately to enable Codas to reach their potential and to recognize the agency that Codas have in supporting their deaf parents. This narrative review aims to specifically explore Codas’ experiences of courtesy stigma, indirect stigma or stigma-by-association. The databases Scopus, Web of Science, Google Scholar, and reference lists of publications were searched; 61 peer-reviewed articles and 2 books were screened; 22 articles featuring qualitative studies and 2 books were included. The researchers found that Codas experienced courtesy stigma due to their association with deaf parents but also exhibit a sense of resilience and agency. Understanding and valuing Codas’ lived experience of courtesy stigma help to make more appropriate recommendations for future research and social interventions.
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© The Author(s) 2026. Published by Oxford University Press. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com
Keywords
Deaf culture and community , Signed languages , Sign language interpreting , Family , Bilingual , Social-emotional development , [SocialStudies]
Citation
O’Connell, N. and Napier, J. (2026) ‘A qualitative literature review of how hearing codas navigate deafness stigma’, Journal of Deaf Studies and Deaf Education, enag051, (16pp). https://doi.org/10.1093/jdsade/enag051
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