Palliative care needs in Parkinson’s disease: focus on anticipatory grief in family carers
| dc.contributor.author | Fox, Siobhán | |
| dc.contributor.author | Azman, Atheerah | |
| dc.contributor.author | Timmons, Suzanne | |
| dc.date.accessioned | 2020-03-18T12:31:47Z | |
| dc.date.available | 2020-03-18T12:31:47Z | |
| dc.date.issued | 2020-02 | |
| dc.description.abstract | Methods: Family carers of people with moderate to advanced PD (Hoehn & Yahr stages 3-5) were invited to complete a survey, including demographic questions and three questionnaires: Zarit Burden Interview (ZBI); 16-item Geriatric Depression Scale (GDS); and Anticipatory Grief Scale (AGS). Results: Anticipatory grief was common among carers of people with PD [mean AGS score =70.41; standard deviation (SD) =16.93; sample range, 38-102]. Though distinct concepts, carers with higher burden and depression scores also experienced more anticipatory grief symptoms. Carers experiencing higher anticipatory grief tended to be caring for someone of a younger age, displaying more non-motor symptoms, at a more advanced disease stage, and who considered either themselves and/or their loved one as depressed. Conclusions: Carers of people with advanced PD experienced anticipatory grief, as well as depression and a high caregiver burden. To improve carer outcomes, our focus should include the period both before and after the death of a loved one, and carers should receive regular psychological assessment and support. | en |
| dc.description.status | Peer reviewed | en |
| dc.description.version | Published Version | en |
| dc.format.mimetype | application/pdf | en |
| dc.identifier.citation | Fox, S., Azman, A. and Timmons, S. (2020) ‘Palliative care needs in Parkinson's disease: focus on anticipatory grief in family carers’, Annals of Palliative Medicine, 9(Supplement 1), pp. 34-43. doi: 10.21037/apm.2020.02.04 | en |
| dc.identifier.doi | 10.21037/apm.2020.02.04 | en |
| dc.identifier.eissn | 2224-5839 | |
| dc.identifier.endpage | 43 | en |
| dc.identifier.issn | 2224-5820 | |
| dc.identifier.issued | Supplement 1 | en |
| dc.identifier.journaltitle | Annals of Palliative Medicine | en |
| dc.identifier.startpage | 34 | en |
| dc.identifier.uri | https://hdl.handle.net/10468/9772 | |
| dc.identifier.volume | 9 | en |
| dc.language.iso | en | en |
| dc.publisher | AME Publishing Company | en |
| dc.rights | © 2020, Annals of Palliative Medicine. This article is made available under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) | en |
| dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/4.0/ | en |
| dc.subject | Anticipatory grief | en |
| dc.subject | Parkinson’s disease | en |
| dc.subject | PD | en |
| dc.subject | Palliative care | en |
| dc.title | Palliative care needs in Parkinson’s disease: focus on anticipatory grief in family carers | en |
| dc.type | Article (peer-reviewed) | en |
