Patient reported outcome measures of quality of end-of-life care: a systematic review

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dc.contributor.authorKearns, Tara
dc.contributor.authorCornally, Nicola
dc.contributor.authorMolloy, D. William
dc.contributor.funderHealth Research Board
dc.date.accessioned2018-02-06T13:36:27Z
dc.date.available2018-02-06T13:36:27Z
dc.date.issued2017
dc.description.abstractEnd-of-life (EoL) care is increasingly used as a generic term in preference to palliative care or terminal care, particularly with reference to individuals with chronic disease, who are resident in community and long-term care (LTC) settings. This review evaluates studies based on patient reported outcome measures (PROMS) of quality of EoL care across all health-care settings. From 1041 citations, 12 studies were extracted by searches conducted in EBSCO, Scopus, Web of Science, PubMed, Cochrane, Open Grey and Google Scholar databases. At present, the evidence base for EoL care is founded on cancer care. This review highlights the paucity of studies that evaluate quality of EoL care for patients with chronic disease outside the established cancer-acute care paradigm, particularly in LTC. This review highlights the absence of any PROMs for the estimated 60% of patients in LTC with cognitive impairment. Patient-reported outcomes (PROs) are critical to understanding how EoL care services and practices affect patients’ health and EoL experience. PROMs describe the quality of care from the patient's perspective and add balance to existing clinical or proxy-derived knowledge on the quality of care and services provided.en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationKearns, T., Cornally, N. and Molloy, W. (2017) 'Patient reported outcome measures of quality of end-of-life care: a systematic review', Maturitas, 96, pp. 16-25 doi: 10.1016/j.maturitas.2016.11.004en
dc.identifier.doi10.1016/j.maturitas.2016.11.004
dc.identifier.endpage25
dc.identifier.issn0378-5122
dc.identifier.journaltitleMaturitasen
dc.identifier.startpage16
dc.identifier.urihttps://hdl.handle.net/10468/5384
dc.identifier.volume96
dc.language.isoenen
dc.publisherElsevier Ireland Ltden
dc.relation.urihttp://www.sciencedirect.com/science/article/pii/S0378512216302900
dc.rights© 2016, the Authors. Published by Elsevier Ireland Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectEnd-of-life careen
dc.subjectLong-term careen
dc.subjectChronic diseaseen
dc.subjectPatient-reported outcome measuresen
dc.subjectPatient-reported outcomesen
dc.subjectCognitive impairmenten
dc.titlePatient reported outcome measures of quality of end-of-life care: a systematic reviewen
dc.typeReviewen
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