The ethics of engagement and representation in community-based participatory research

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dc.contributor.authorO’Sullivan, Siobhanen
dc.contributor.authorDesmond, Elaineen
dc.contributor.authorBuckley, Margareten
dc.contributor.funderIrish Research Councilen
dc.date.accessioned2023-06-27T15:57:39Z
dc.date.available2023-06-27T15:57:39Z
dc.date.issued25/05/2023en
dc.description.abstractThis paper focuses on ethics in community-based participatory research (CBPR) from inception to post-publication. Central to CBPR is a collaborative, partnership approach that recognises the strengths of partners and engages their distinctive voice and knowledge in the research process. While the ethical complexities that arise in the course of research practice in CBPR can transcend individual projects, they are also grounded in the particularity of the project, community, and research partners. This paper reflects on the experiences of two participatory social policy research projects on housing in Ireland, conducted over the past three years. These projects involved collaborating with older people living in rural areas nationwide and with residents of small communities on offshore islands. The paper explores the ethics of engagement (regarding methods of involvement and access), and the ethics of representation (incorporating the depiction and sharing of research findings) and argues that researchers must pay attention to the specificity of each project and be alive to generating an organic research ethics in how research is set up, conducted, represented, and disseminated. In so doing, we can better foster agency and authenticity in the relationships developed throughout research processes and reflect on and meet shared values and responsibilitiesen
dc.description.sponsorshipIrish Research Council (New Foundations Grant)en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationO’Sullivan, S., Desmond, E. and Buckley, M. (2023) ‘The ethics of engagement and representation in community-based participatory research’, Ethics and Social Welfare, 17(2), pp. 159–174. https://doi.org/10.1080/17496535.2023.2211756en
dc.identifier.doi10.1080/17496535.2023.2211756en
dc.identifier.endpage174en
dc.identifier.issn1749-6535en
dc.identifier.issn1749-6543en
dc.identifier.issued2en
dc.identifier.journaltitleEthics and Social Welfareen
dc.identifier.startpage159en
dc.identifier.urihttps://hdl.handle.net/10468/14694
dc.identifier.volume17en
dc.language.isoenen
dc.publisherTaylor & Francisen
dc.relation.ispartofEthics and Social Welfareen
dc.rights© 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License(http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.subjectCommunity-based participatory researchen
dc.subjectResearch ethicsen
dc.subjectEngagementen
dc.subjectRepresentationen
dc.subjectDisseminationen
dc.titleThe ethics of engagement and representation in community-based participatory researchen
dc.typeArticle (peer-reviewed)en
dc.typejournal-articleen
oaire.citation.issue2en
oaire.citation.volume17en
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