APPEAL‐1: A pan-European survey of patient/caregiver perceptions of peanut allergy management

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dc.contributor.author Blumchen, Katharina
dc.contributor.author Dunn Galvin, Audrey
dc.contributor.author Timmermans, Frans
dc.contributor.author Regent, Lynne
dc.contributor.author Schnadt, Sabine
dc.contributor.author Podestà, Marcia
dc.contributor.author Sánchez, Angel
dc.contributor.author Couratier, Pascale
dc.contributor.author Feeney, Mary
dc.contributor.author Hjorth, Betina
dc.contributor.author Patel, Ram
dc.contributor.author Lush, Tessa
dc.contributor.author Ryan, Robert
dc.contributor.author Vereda, Andrea
dc.contributor.author Fisher, Helen R.
dc.contributor.author Fernández-Rivas, Montserrat
dc.date.accessioned 2020-05-27T10:40:18Z
dc.date.available 2020-05-27T10:40:18Z
dc.date.issued 2020-05-21
dc.identifier.citation Blumchen, K., Dunn Galvin, A., Timmermans, F., Regent, L., Schnadt, S., Podestà, M., Sánchez, A., Couratier, P., Feeney, M., Hjorth, B., Patel, R., Lush, T., Ryan, R., Vereda, A., Fisher, H.R. and Fernández‐Rivas, M. (2020) ‘APPEAL‐1: A pan-European survey of patient/caregiver perceptions of peanut allergy management’, Allergy. doi: 10.1111/all.14414 en
dc.identifier.issn 0105-4538
dc.identifier.uri http://hdl.handle.net/10468/10065
dc.identifier.doi 10.1111/all.14414 en
dc.description.abstract Background: Peanut allergy (PA) is associated with marked quality‐of‐life (QoL) impairment. However, data are lacking on the experience and impact of living with PA from the perspectives of persons with PA (PwPA) and their caregivers. A llergy to P eanuts imP acting E motions A nd L ife study 1 (APPEAL‐1) was a pan‐European survey investigating these perspectives. This first of two articles reports clinical characteristics of PwPA and PA management practices. Methods: APPEAL‐1 was a quantitative, online survey conducted in eight European countries, developed by eight representatives of patient advocacy groups and five healthcare professionals and researchers. Eligible participants included adults with PA and parents/caregivers of PwPA who responded by self‐report and provided proxy‐report for the PwPA under their care. Data were summarised using nonweighted descriptive statistics. Results: Of 1846 completed/analysed questionnaires, 528 were from adults with PA (self‐report); 437 by proxy for children with PA (34 aged 0‐3 years, 287 aged 4‐12 years, 116 aged 13‐17 years); 881 from parents/caregivers (self‐report). Of PwPA (N=965), 95% reported diagnosis by healthcare professionals, mostly by clinical history and peanut‐specific allergy testing. Rates of allergic rhinitis, asthma, and other food allergies in PwPA were 50%, 42%, and 79%, respectively. Only 31% of PwPA received HCP advice/support following their worst allergic reaction, and 28% had not been prescribed an adrenaline auto‐injector. Results were similar by country but varied by age group. Conclusions: The APPEAL‐1 findings contribute to greater understanding of PA impact on PwPA, caregivers, and family members and the need for improved PA management across Europe. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher John Wiley & Sons, Inc. en
dc.rights © 2020, John Wiley & Sons, Inc. This is the peer reviewed version of the following article: Blumchen, K., Dunn Galvin, A., Timmermans, F., Regent, L., Schnadt, S., Podestà, M., Sánchez, A., Couratier, P., Feeney, M., Hjorth, B., Patel, R., Lush, T., Ryan, R., Vereda, A., Fisher, H.R. and Fernández‐Rivas, M. (2020) ‘APPEAL‐1: A pan‐European survey of patient/caregiver perceptions of peanut allergy management’, Allergy, doi: 10.1111/all.14414, which has been published in final form at https://doi.org/10.1111/all.14414. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. en
dc.subject Clinical history en
dc.subject Diagnosis en
dc.subject Europe en
dc.subject Peanut allergy en
dc.subject Quality of life en
dc.title APPEAL‐1: A pan-European survey of patient/caregiver perceptions of peanut allergy management en
dc.type Article (peer-reviewed) en
dc.internal.authorcontactother Audrey Dunn Galvin, Applied Psychology, University College Cork, Cork, Ireland. +353-21-490-3000 Email: a.dunngalvin@ucc.ie en
dc.internal.availability Full text available en
dc.check.info Access to this article is restricted until 12 months after publication by request of the publisher. en
dc.check.date 2021-05-21
dc.description.version Accepted Version en
dc.contributor.funder Aimmune Therapeutics, United States en
dc.description.status Peer reviewed en
dc.identifier.journaltitle Allergy en
dc.internal.IRISemailaddress a.dunngalvin@ucc.ie en
dc.internal.bibliocheck In press. Check volume / issue / page range. Amend citation and copyright statement accordingly. en
dc.identifier.eissn 1398-9995


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