Patient reported outcome measures of quality of end-of-life care: a systematic review

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dc.contributor.author Kearns, Tara
dc.contributor.author Cornally, Nicola
dc.contributor.author Molloy, D. William
dc.date.accessioned 2018-02-06T13:36:27Z
dc.date.available 2018-02-06T13:36:27Z
dc.date.issued 2017
dc.identifier.citation Kearns, T., Cornally, N. and Molloy, W. (2017) 'Patient reported outcome measures of quality of end-of-life care: a systematic review', Maturitas, 96, pp. 16-25 doi: 10.1016/j.maturitas.2016.11.004 en
dc.identifier.volume 96
dc.identifier.startpage 16
dc.identifier.endpage 25
dc.identifier.issn 0378-5122
dc.identifier.uri http://hdl.handle.net/10468/5384
dc.identifier.doi 10.1016/j.maturitas.2016.11.004
dc.description.abstract End-of-life (EoL) care is increasingly used as a generic term in preference to palliative care or terminal care, particularly with reference to individuals with chronic disease, who are resident in community and long-term care (LTC) settings. This review evaluates studies based on patient reported outcome measures (PROMS) of quality of EoL care across all health-care settings. From 1041 citations, 12 studies were extracted by searches conducted in EBSCO, Scopus, Web of Science, PubMed, Cochrane, Open Grey and Google Scholar databases. At present, the evidence base for EoL care is founded on cancer care. This review highlights the paucity of studies that evaluate quality of EoL care for patients with chronic disease outside the established cancer-acute care paradigm, particularly in LTC. This review highlights the absence of any PROMs for the estimated 60% of patients in LTC with cognitive impairment. Patient-reported outcomes (PROs) are critical to understanding how EoL care services and practices affect patients’ health and EoL experience. PROMs describe the quality of care from the patient's perspective and add balance to existing clinical or proxy-derived knowledge on the quality of care and services provided. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Elsevier Ireland Ltd en
dc.relation.uri http://www.sciencedirect.com/science/article/pii/S0378512216302900
dc.rights © 2016, the Authors. Published by Elsevier Ireland Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). en
dc.rights.uri http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subject End-of-life care en
dc.subject Long-term care en
dc.subject Chronic disease en
dc.subject Patient-reported outcome measures en
dc.subject Patient-reported outcomes en
dc.subject Cognitive impairment en
dc.title Patient reported outcome measures of quality of end-of-life care: a systematic review en
dc.type Review en
dc.internal.authorcontactother tarakearns@gmail.com en
dc.internal.availability Full text available en
dc.description.version Published Version en
dc.internal.wokid WOS:000392685400003
dc.contributor.funder Health Research Board
dc.description.status Peer reviewed en
dc.identifier.journaltitle Maturitas en
dc.internal.IRISemailaddress Tara Kearns, Centre for Gerontology and Rehabilitation, University College Cork, Cork, Ireland. +353-21-490-3000. E-mail: tarakearns@gmail.com en


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© 2016, the Authors. Published by Elsevier Ireland Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Except where otherwise noted, this item's license is described as © 2016, the Authors. Published by Elsevier Ireland Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
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