The evil side of sharing personal health information online

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dc.contributor.author O'Connor, Yvonne
dc.contributor.author Rowan, Wendy
dc.contributor.author Lynch, Laura
dc.contributor.author Heavin, Ciara
dc.date.accessioned 2018-07-10T09:08:42Z
dc.date.available 2018-07-10T09:08:42Z
dc.date.issued 2017-08
dc.identifier.citation O' Connor, Y., Rowan, W., Lynch, L., and Heavin, C. (2017) ‘The evil side of sharing personal health information online’, AMCIS 2017: 23rd Americas Conference on Information Systems, Boston, United States, 10 -12 August. Available online: http://aisel.aisnet.org/amcis2017/Healthcare/Presentations/7/ en
dc.identifier.startpage 1 en
dc.identifier.endpage 5 en
dc.identifier.uri http://hdl.handle.net/10468/6442
dc.description.abstract When joining a social network users are typically asked to register and supply their personal/private information. As part of the registration process, users must confirm that they have read the terms and conditions of site use, as well as the privacy policy for that particular social network. Do people actually read these documents, and do they really understand what they are consenting to? When it comes to sharing personal health conditions with others online, it is worth considering who will have access to this valuable, sensitive data and how it will be used in the future. This research aims to improve the form and accessibility of contractual information presented to users of Health Social Networks (HSNs), by looking at alternative ways to engage and communicate these details on registration. Taking a mixed methods approach, this research observes registration behaviours and questions users on their engagement with eConsent through HSNs. Our aim is to elucidate the challenges, risks and potential dangers associated with sharing personal health information (PHI) using HSNs. This research proposes a list of guidelines to better support userâ s decision making needs when choosing to register and providing personal health information to HSNs. en
dc.description.sponsorship CHASM Project Seed Award 201607/Z/16/Z. en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Association for Information Systems (AIS) en
dc.relation.ispartof 23rd Americas Conference on Information Systems (AMCIS 2017)
dc.relation.uri http://aisel.aisnet.org/amcis2017/Healthcare/Presentations/7/
dc.rights © 2017 by Association for Information Systems (AIS). en
dc.subject Health social networks (HSNs) en
dc.subject Consent en
dc.subject Privacy en
dc.subject eConsent en
dc.subject Personal health infrmation en
dc.subject Data privacy en
dc.subject Data protection en
dc.subject Online privacy en
dc.subject Digital informed consent en
dc.subject Health information en
dc.title The evil side of sharing personal health information online en
dc.type Conference item en
dc.internal.authorcontactother Yvonne O'Connor, Business Information Systems, University College Cork, Cork, Ireland. +353-21-490-3000 Email: y.oconnor@ucc.ie en
dc.internal.availability Full text available en
dc.date.updated 2018-07-10T08:55:17Z
dc.description.version Accepted Version en
dc.internal.rssid 393852861
dc.contributor.funder Wellcome Trust en
dc.description.status Peer reviewed en
dc.identifier.journaltitle 23rd Americas Conference on Information Systems (AMCIS 2017) en
dc.internal.copyrightchecked No !!CORA!! en
dc.internal.licenseacceptance Yes en
dc.internal.conferencelocation Boston, United States en
dc.internal.IRISemailaddress y.oconnor@ucc.ie en
dc.relation.project info:eu-repo/grantAgreement/WT/Medical Humanities/201607//Consenting HeAlth related data through Social Media (CHASM Project)/ en


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