dc.contributor.author	Kenny, Lorna
dc.contributor.author	Moore, Kevin
dc.contributor.author	O'Riordan, Clíona
dc.contributor.author	Fox, Siobhan
dc.contributor.author	Barton, John
dc.contributor.author	Tedesco, Salvatore
dc.contributor.author	Sica, Marco
dc.contributor.author	Crowe, Colum
dc.contributor.author	Alamäki, Antti
dc.contributor.author	Condell, Joan
dc.contributor.author	Nordström, Anna
dc.contributor.author	Timmons, Suzanne
dc.contributor.funder	European Regional Development Fund	en
dc.contributor.funder	Interreg	en
dc.contributor.funder	Enterprise Ireland	en
dc.contributor.funder	AbbVie	en
dc.date.accessioned	2022-03-16T12:04:47Z
dc.date.available	2022-03-16T12:04:47Z
dc.date.issued	2022-01-06
dc.date.updated	2022-03-16T11:53:14Z
dc.description.abstract	Objective: This study aims to understand the views and needs of people with Parkinson disease regarding wearable devices for disease monitoring and management. Methods: This study used a mixed method parallel design, wherein survey and focus groups were concurrently conducted with people living with Parkinson disease in Munster, Ireland. Surveys and focus group schedules were developed with input from people with Parkinson disease. The survey included questions about technology use, wearable device knowledge, and Likert items about potential device features and capabilities. The focus group participants were purposively sampled for variation in age (all were aged >50 years) and sex. The discussions concerned user priorities, perceived benefits of wearable devices, and preferred features. Simple descriptive statistics represented the survey data. The focus groups analyzed common themes using a qualitative thematic approach. The survey and focus group analyses occurred separately, and results were evaluated using a narrative approach. Results: Overall, 32 surveys were completed by individuals with Parkinson disease. Four semistructured focus groups were held with 24 people with Parkinson disease. Overall, the participants were positive about wearable devices and their perceived benefits in the management of symptoms, especially those of motor dexterity. Wearable devices should demonstrate clinical usefulness and be user-friendly and comfortable. Participants tended to see wearable devices mainly in providing data for health care professionals rather than providing feedback for themselves, although this was also important. Barriers to use included poor hand function, average technology confidence, and potential costs. It was felt that wearable device design that considered the user would ensure better compliance and adoption. Conclusions: Wearable devices that allow remote monitoring and assessment could improve health care access for patients living remotely or are unable to travel. COVID-19 has increased the use of remotely delivered health care; therefore, future integration of technology with health care will be crucial. Wearable device designers should be aware of the variability in Parkinson disease symptoms and the unique needs of users. Special consideration should be given to Parkinson disease–related health barriers and the users’ confidence with technology. In this context, a user-centered design approach that includes people with Parkinson disease in the design of technology will likely be rewarded with improved user engagement and the adoption of and compliance with wearable devices, potentially leading to more accurate disease management, including self-management.	en
dc.description.sponsorship	European Regional Development Fund (co-funded under Ireland’s European Structural and Investment Funds Programme 2014-2020); Interreg Northern Periphery and Artic Programme funded project (SENDOC (smart sensordevices for rehabilitation and connected health)); Enterprise Ireland and Abbvie Inc. (grant agreement no. IP 2017 0625)	en
dc.description.status	Peer reviewed	en
dc.description.version	Published Version	en
dc.format.mimetype	application/pdf	en
dc.identifier.articleid	e27418	en
dc.identifier.citation	Kenny, L., Moore, K., O' Riordan, C., Fox, S., Barton, J., Tedesco, S., Sica, M., Crowe, C., Alamäki, A., Condell, J., Nordström, A. and Timmons, S. (2022) ‘The Views and Needs of People With Parkinson Disease Regarding Wearable Devices for Disease Monitoring: Mixed Methods Exploration’, JMIR Formative Research. JMIR Formative Research, 6(1), e27418 (14 pp). doi: 10.2196/27418.	en
dc.identifier.doi	10.2196/27418	en
dc.identifier.endpage	14	en
dc.identifier.issn	2561-326X
dc.identifier.issued	1	en
dc.identifier.journaltitle	Jmir Formative Research	en
dc.identifier.startpage	1	en
dc.identifier.uri	https://hdl.handle.net/10468/12932
dc.identifier.volume	6	en
dc.language.iso	en	en
dc.publisher	JMIR Publications	en
dc.relation.uri	https://formative.jmir.org/2022/1/e27418
dc.rights	© Lorna Kenny, Kevin Moore, Clíona O' Riordan, Siobhan Fox, John Barton, Salvatore Tedesco, Marco Sica, Colum Crowe, Antti Alamäki, Joan Condell, Anna Nordström, Suzanne Timmons. Originally published in JMIR Formative Research (https://formative.jmir.org), 06.01.2022. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.	en
dc.rights.uri	https://creativecommons.org/licenses/by/4.0/	en
dc.subject	Parkinson disease	en
dc.subject	Wearable devices	en
dc.subject	Technology	en
dc.subject	Mixed method	en
dc.subject	Focus group	en
dc.subject	Survey	en
dc.subject	Mobile phone	en
dc.title	The views and needs of people with Parkinson disease regarding wearable devices for disease monitoring: Mixed methods exploration	en
dc.type	Article (peer-reviewed)	en

The views and needs of people with Parkinson disease regarding wearable devices for disease monitoring: Mixed methods exploration

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