CHIP-Family intervention to improve the psychosocial well-being of young children with congenital heart disease and their families: Results of a randomised controlled trial

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dc.contributor.authorvan der Mheen, Malindi
dc.contributor.authorMeentken, Maya G.
dc.contributor.authorvan Beynum, Ingrid M.
dc.contributor.authorvan der Ende, Jan
dc.contributor.authorvan Galen, Eugène
dc.contributor.authorZirar, Anne
dc.contributor.authorAendekerk, Elisabeth W. C.
dc.contributor.authorvan den Adel, Tabitha P. L.
dc.contributor.authorBogers, Ad J. J. C.
dc.contributor.authorMcCusker, Christopher G.
dc.contributor.authorHillegers, Manon H. J.
dc.contributor.authorHelbing, Willem A.
dc.contributor.authorUtens, Elisabeth M. W. J.
dc.contributor.funderFonds NutsOhraen
dc.date.accessioned2019-10-06T21:52:35Z
dc.date.available2019-10-06T21:52:35Z
dc.date.issued2019-08-05
dc.description.abstractObjective:Children with congenital heart disease and their families are at risk of psychosocial problems. Emotional and behavioural problems, impaired school functioning, and reduced exercise capacity often occur. To prevent and decrease these problems, we modified and extended the previously established Congenital Heart Disease Intervention Program (CHIP)–School, thereby creating CHIP-Family. CHIP-Family is the first psychosocial intervention with a module for children with congenital heart disease. Through a randomised controlled trial, we examined the effectiveness of CHIP-Family.Methods:Ninety-three children with congenital heart disease (age M = 5.34 years, SD = 1.27) were randomised to CHIP-Family (n = 49) or care as usual (no psychosocial care; n = 44). CHIP-Family consisted of a 1-day group workshop for parents, children, and siblings and an individual follow-up session for parents. CHIP-Family was delivered by psychologists, paediatric cardiologists, and physiotherapists. At baseline and 6-month follow-up, mothers, fathers, teachers, and the child completed questionnaires to assess psychosocial problems, school functioning, and sports enjoyment. Moreover, at 6-month follow-up, parents completed program satisfaction assessments.Results:Although small improvements in child outcomes were observed in the CHIP-Family group, no statistically significant differences were found between outcomes of the CHIP-Family and care-as-usual group. Mean parent satisfaction ratings ranged from 7.4 to 8.1 (range 0–10).Conclusions:CHIP-Family yielded high program acceptability ratings. However, compared to care as usual, CHIP-Family did not find the same extent of statistically significant outcomes as CHIP-School. Replication of promising psychological interventions, and examination of when different outcomes are found, is recommended for refining interventions in the future.Trial registryDutch Trial Registry number NTR6063, .en
dc.description.sponsorshipFonds NutsOhra (grant number 101.083)en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationvan der Mheen, M., Meentken, M. G., van Beynum, I. M., van der Ende, J., van Galen, E., Zirar, A., Aendekerk, E. W. C., van den Adel, T. P. L., Bogers, A. J. J. C., McCusker, C. G., Hillegers, M. H. J., Helbing, W. A. and Utens, E. M. W. J. (2019) 'CHIP-Family intervention to improve the psychosocial well-being of young children with congenital heart disease and their families: results of a randomised controlled trial', Cardiology in the Young, 29(9), pp. 1172-1182. DOI: 10.1017/S1047951119001732en
dc.identifier.doi10.1017/S1047951119001732en
dc.identifier.eissn1467-1107
dc.identifier.endpage1182en
dc.identifier.issn1047-9511
dc.identifier.issued9en
dc.identifier.journaltitleCardiology in the Youngen
dc.identifier.startpage1172en
dc.identifier.urihttps://hdl.handle.net/10468/8713
dc.identifier.volume29en
dc.language.isoenen
dc.publisherCambridge University Pressen
dc.relation.urihttps://www.cambridge.org/core/journals/cardiology-in-the-young/article/chipfamily-intervention-to-improve-the-psychosocial-wellbeing-of-young-children-with-congenital-heart-disease-and-their-families-results-of-a-randomised-controlled-trial/DCB680C13DFA6734C089DD34DD5A10FE
dc.rights©Cambridge University Press 2019 This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en
dc.subjectCongenital heart defectsen
dc.subjectChildrenen
dc.subjectFamiliesen
dc.subjectPsychosocial well-beingen
dc.subjectInterventionen
dc.titleCHIP-Family intervention to improve the psychosocial well-being of young children with congenital heart disease and their families: Results of a randomised controlled trialen
dc.typeArticle (peer-reviewed)en
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