dc.contributor.author	Porter, Emma	en
dc.contributor.author	Murphy, Michelle	en
dc.contributor.author	O’Connor, Cathal	en
dc.date.accessioned	2023-05-30T13:45:29Z
dc.date.available	2023-05-30T13:45:29Z
dc.date.issued	2023-05-12	en
dc.description.abstract	Background: Lupus comprises a complex group of inflammatory disorders including cutaneous lupus erythematosus (CLE) and systemic lupus erythematosus (SLE). The issue of health misinformation is increasingly problematic, although the content of misinformation related to lupus available online has not been deeply explored. This study aimed to qualitatively assess the type of misinformation related to lupus available online. Methods: A literature search on PubMed was conducted, using search terms “cutaneous lupus” OR “discoid lupus” OR “lupus” AND “misinformation” OR “conspiracy” OR “disinformation.” Further searches were also performed on Google, YouTube, Twitter, Facebook, Instagram, and TikTok. Results: Published literature describing lupus-related misinformation was minimal, with only three manuscripts identified. Conversely, a variety of points of misinformation were identified online and on social media. Key themes identified in online content included suggestion of incorrect causes such as infection or aspartame consumption, false risk assessments such as lupus never developing in males, false claims about conventional treatments, and promotion of alternative treatments or “cures” without evidence. Conclusion: Dermatologists, rheumatologists, and all clinicians treating patients with lupus play an essential role in dispelling the pervasive misinformation surrounding the disease and its treatments, encouraging patients to seek reliable sources of information, and advocating for evidence-based guidance.	en
dc.description.status	Peer reviewed	en
dc.description.version	Accepted Version	en
dc.format.mimetype	application/pdf	en
dc.identifier.citation	Porter, E., Murphy, M. and O’Connor, C. (2023) 'Crying wolf: A qualitative review of misinformation and conspiracy theories in lupus erythematosus', Lupus. doi:10.1177/09612033231174423	en
dc.identifier.doi	10.1177/09612033231174423	en
dc.identifier.eissn	1477-0962	en
dc.identifier.issn	0961-2033	en
dc.identifier.journaltitle	Lupus	en
dc.identifier.uri	https://hdl.handle.net/10468/14522
dc.language.iso	en	en
dc.publisher	SAGE Publishing	en
dc.rights	© 2023, the Authors. Reprinted by permission of SAGE Publications. This is a post-peer-review, pre-copyedit version of the following article: Porter, E., Murphy, M. and O’Connor, C. (2023) 'Crying wolf: A qualitative review of misinformation and conspiracy theories in lupus erythematosus', Lupus, doi:10.1177/09612033231174423. The final authenticated version is available online at: https://doi.org/10.1177/09612033231174423	en
dc.subject	Lupus	en
dc.subject	Misinformation	en
dc.subject	Disinformation	en
dc.subject	Conspiracy theories	en
dc.title	Crying wolf: A qualitative review of misinformation and conspiracy theories in lupus erythematosus	en
dc.type	Article (peer-reviewed)	en

Crying wolf: A qualitative review of misinformation and conspiracy theories in lupus erythematosus

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