A mHealth patient passport for adult Cystic Fibrosis patients

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dc.contributor.authorVagg, Tamara
dc.contributor.authorShortt, Cathy
dc.contributor.authorHickey, Claire
dc.contributor.authorEustace, Joseph A.
dc.contributor.authorPlant, Barry J.
dc.contributor.authorTabirca, Sabin
dc.contributor.funderSeventh Framework Programmeen
dc.date.accessioned2018-10-22T09:03:14Z
dc.date.available2018-10-22T09:03:14Z
dc.date.issued2018-08-24
dc.date.updated2018-10-22T08:41:48Z
dc.description.abstractLife expectancy for some Cystic Fibrosis (CF) patients is rising and new complications and procedures are predicted. Subsequently there is need for education and management interventions that can benefit CF adults. This paper proposes a CF patient passport to record basic medical information through a smartphone application (app), giving the patient access to their own data. It is anticipated that such an app will be beneficial to patients when travelling abroad and between CF centres. This app is designed by a CF multidisciplinary team to be a lightweight reflection of a current patient file. The passport app is created using PhoneGap so that is can be deployed for both Android and iOS devices. The app is introduced to seven participants as part of a stress test. The app is found to be usable and accessible. The app is now being prepared for a pilot study with adult CF patients.en
dc.description.statusNot peer revieweden
dc.description.urihttp://mobihealth.eai-conferences.org/en
dc.description.versionAccepted Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationVagg, T., Shortt, C., Hickey, C., Eustace, J. A., Plant, B. J. and Tabirca, S. (2018) ‘A mHealth Patient Passport for Adult Cystic Fibrosis Patients’, in Perego, P., Rahmani, A. and TaheriNejad N. (eds) 7th EAI International Conference on Wireless Mobile Communication and Healthcare - MobiHealth 2017, Vienna, Austria, November 14-15, 2017, Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 247. Cham: Springer International Publishing AG, pp. 155-162. doi: 10.1007/978-3-319-98551-0_18en
dc.identifier.doi10.1007/978-3-319-98551-0_18
dc.identifier.endpage162en
dc.identifier.isbn978-3-319-98550-3
dc.identifier.journaltitleLecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineeringen
dc.identifier.startpage155en
dc.identifier.urihttps://hdl.handle.net/10468/7025
dc.identifier.volume247en
dc.language.isoenen
dc.publisherSpringer Nature Switzerland AGen
dc.relation.ispartofInternational Conference on Wireless Mobile Communication and Healthcare - MobiHealth 2017
dc.relation.projectinfo:eu-repo/grantAgreement/EC/FP7::SP1::HEALTH/603038/EU/Cystic Fibrosis Microbiome-determined Antibiotic Therapy Trial in Exacerbations: Results Stratified./CFMATTERSen
dc.relation.urihttps://link.springer.com/chapter/10.1007%2F978-3-319-98551-0_18
dc.rights© 2018, ICST Institute for Computer Sciences, Social Informatics and Telecommunications Engineering. All rights reserved. The final authenticated version is available online at https://doi.org/10.1007/978-3-319-98551-0_18en
dc.subjectCystic Fibrosisen
dc.subjectmHealthen
dc.subjectPatient passporten
dc.titleA mHealth patient passport for adult Cystic Fibrosis patientsen
dc.typeConference itemen
dc.typeBook chapteren
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