The RESPECT Study for consensus on global bereavement care after stillbirth
Shakespeare, Clare; Merriel, Abi; Bakhbakhi, Danya; Blencowe, Hannah; Boyle, Frances M.; Flenady, Vicki; Gold, Katherine; Horey, Dell; Lynch, Mary; Mills, Tracey A.; Murphy, Margaret M.; Storey, Claire; Toolan, Miriam; Siassakos, Dimitrios; RESPECT working group
Date:
2020-02-03
Copyright:
© 2020, International Federation of Gynecology and Obstetrics. Published by John Wiley & Sons Inc. This is the peer reviewed version of the following article: Shakespeare, C., Merriel, A., Bakhbakhi, D., Blencowe, H., Boyle, F. M., Flenady, V., Gold, K., Horey, D., Lynch, M., Mills, T. A., Murphy, M. M., Storey, C., Toolan, M., Siassakos, D. and RESPECT working group (2020) 'The RESPECT Study for consensus on global bereavement care after stillbirth', International Journal of Gynecology and Obstetrics. doi: 10.1002/ijgo.13110, which has been published in final form at https://doi.org/10.1002/ijgo.13110. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
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Access to this article is restricted until 12 months after publication by request of the publisher.
Restriction lift date:
2021-02-03
Citation:
Shakespeare, C., Merriel, A., Bakhbakhi, D., Blencowe, H., Boyle, F. M., Flenady, V., Gold, K., Horey, D., Lynch, M., Mills, T. A., Murphy, M. M., Storey, C., Toolan, M., Siassakos, D. and RESPECT working group (2020) 'The RESPECT Study for consensus on global bereavement care after stillbirth', International Journal of Gynecology and Obstetrics. doi: 10.1002/ijgo.13110
Abstract:
Objective: To develop global consensus on a set of evidence‐based core principles for bereavement care after stillbirth. Methods: A modified policy‐Delphi methodology was used to consult international stakeholders and healthcare workers with experience in stillbirth between September 2017 and October 2018. Five sequential rounds involved two expert stakeholder meetings and three internet‐based surveys, including a global internet‐based survey targeted at healthcare workers in a wide range of settings. Results: Initially, 23 expert stakeholders considered 43 evidence‐based themes derived from systematic reviews, identifying 10 core principles. The global survey received 236 responses from participants in 26 countries, after which nine principles met a priori criteria for inclusion. The final stakeholder meeting and internet‐based survey of all participants confirmed consensus on eight core principles. Highest quality bereavement care should be enabled through training of healthcare staff to reduce stigma and establish respectful care, including acknowledgement and support for grief responses, and provision for physical and psychologic needs. Women and families should be supported to make informed choices, including those concerning their future reproductive health. Conclusion: Consensus was established for eight principles for stillbirth bereavement care. Further work should explore implementation and involve the voices of women and families globally.
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