World Workshop on Oral Medicine VIII: Development of a core outcome set for oral lichen planus: The patient perspective

dc.contributor.authorDiniz-Freitas, Márcioen
dc.contributor.authorLópez-Pintor, Rosa Maríaen
dc.contributor.authorBissonnette, Carolineen
dc.contributor.authorDan, Hongxiaen
dc.contributor.authorKuduva Ramesh, Shilpa Shreeen
dc.contributor.authorValdéz, J. Amadeoen
dc.contributor.authorBrennan, Michael T.en
dc.contributor.authorBurkhart, Nancy W.en
dc.contributor.authorFarag, Arwaen
dc.contributor.authorGreenberg, Martin S.en
dc.contributor.authorHong, Catherineen
dc.contributor.authorSetterfield, Jane F.en
dc.contributor.authorWoo, Sook-Binen
dc.contributor.authorSollecito, Thomas P.en
dc.contributor.authorByrne, Harrieten
dc.contributor.authorRobledo-Sierra, Jairoen
dc.contributor.authorTaylor, Jenniferen
dc.contributor.authorNi Riordain, Richealen
dc.date.accessioned2023-04-25T14:59:07Z
dc.date.available2023-04-25T14:59:07Z
dc.date.issued2023-03-01en
dc.description.abstractObjective: This study aimed to explore the lived experience of patients with oral lichen planus (OLP) and investigate what treatment-related outcomes are the most important to them and should be included in a core outcome set (COS) for OLP. Study Design: A qualitative study involving focus group work with 10 participants was conducted. Interviews with each focus group were held twice: session 1 explored the lived experience of patients with OLP, and session 2 allowed patients to review a summary of the outcome domains used in the OLP literature to date. The discussions were recorded, transcribed verbatim, and analyzed using framework analysis. Results: In session 1, 4 themes and 8 sub-themes emerged from the data analysis. An additional outcome, ‘knowledge of family and friends,’ was suggested in session 2. Conclusions: We have gained valuable insight into the lived experience of patients with OLP via this qualitative study. To our knowledge, this study is the first to explore the patient perspective on what should be measured in clinical trials on OLP, highlighting an important additional suggested outcome. This additional outcome will be voted upon in a consensus process to determine a minimum COS for OLP.en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationDiniz-Freitas, M., López-Pintor, R. M., Bissonnette, C., Dan, H., Kuduva Ramesh, S. S., Valdéz, J. A., Brennan, M. T., Burkhart, N. W., Farag, A., Greenberg, M. S., Hong, C., Setterfield, J. F., Woo, S.-B., Sollecito, T. P., Byrne, H., Robledo-Sierra, J., Taylor, J., Ni Riordain, R. (2023) ‘World Workshop on Oral Medicine VIII: Development of a core outcome set for oral lichen planus: The patient perspective’, Oral Surgery, Oral Medicine, Oral Pathology and Oral Radiology. doi: 10.1016/j.oooo.2023.02.015en
dc.identifier.doi10.1016/j.oooo.2023.02.015en
dc.identifier.issn2212-4403en
dc.identifier.journaltitleOral Surgery, Oral Medicine, Oral Pathology and Oral Radiologyen
dc.identifier.urihttps://hdl.handle.net/10468/14402
dc.language.isoenen
dc.publisherElsevier Inc.en
dc.relation.ispartofOral Surgery, Oral Medicine, Oral Pathology and Oral Radiologyen
dc.relation.ispartofWorld Workshop on Oral Medicine VIII (WWOM VIII) May 2-3 2022, Memphis, USAen
dc.rights© 2023, the Authors. Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/ 4.0/)en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en
dc.subjectOral lichen planusen
dc.titleWorld Workshop on Oral Medicine VIII: Development of a core outcome set for oral lichen planus: The patient perspectiveen
dc.typeConference itemen
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