Parents and clinicians: partners in perinatal bereavement research –experiences from the International Stillbirth Alliance Conference 2017
Springer Nature Publishing AG
In recent years, there has been a global call to reduce the numbers of preventable stillbirths and increase public awareness about the incidence and impact of pregnancy loss. The lived experiences of bereaved parents have much to contribute to developing the research agenda and clinical care in pregnancy loss. The multidisciplinary Pregnancy Loss Research Group (PLRG) based at the INFANT Centre at University College Cork and Cork University Maternity Hospital, has an established practice of active engagement and participation of patient members. This partnership provided the catalyst to model a similar collaborative approach between clinicians, researchers and bereaved parents when the PLRG was successful in their bid to host the International Stillbirth Alliance (ISA) annual conference in 2017. Over 400 hundred delegates from around the globe attended the conference, of which one quarter were bereaved parents.
Stillbirth , Patient engagement , Bereavement care , Pregnancy loss , Conference , Patient partnership , Training and education
Rice, R., Nuzum, D., O’Connell, O. and O’Donoghue, K. (2019) 'Parents and clinicians: partners in perinatal bereavement research –experiences from the International Stillbirth Alliance Conference 2017', Research Involvement and Engagement, 5(1), 9 pp. DOI: 10.1186/s40900-018-0137-8