Parents and clinicians: partners in perinatal bereavement research –experiences from the International Stillbirth Alliance Conference 2017

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dc.contributor.authorRice, Rachel
dc.contributor.authorNuzum, Daniel
dc.contributor.authorO'Connell, Orla
dc.contributor.authorO'Donoghue, Keelin
dc.date.accessioned2019-02-18T11:53:17Z
dc.date.available2019-02-18T11:53:17Z
dc.date.issued2019
dc.description.abstractIn recent years, there has been a global call to reduce the numbers of preventable stillbirths and increase public awareness about the incidence and impact of pregnancy loss. The lived experiences of bereaved parents have much to contribute to developing the research agenda and clinical care in pregnancy loss. The multidisciplinary Pregnancy Loss Research Group (PLRG) based at the INFANT Centre at University College Cork and Cork University Maternity Hospital, has an established practice of active engagement and participation of patient members. This partnership provided the catalyst to model a similar collaborative approach between clinicians, researchers and bereaved parents when the PLRG was successful in their bid to host the International Stillbirth Alliance (ISA) annual conference in 2017. Over 400 hundred delegates from around the globe attended the conference, of which one quarter were bereaved parents.en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationRice, R., Nuzum, D., O’Connell, O. and O’Donoghue, K. (2019) 'Parents and clinicians: partners in perinatal bereavement research –experiences from the International Stillbirth Alliance Conference 2017', Research Involvement and Engagement, 5(1), 9 pp. DOI: 10.1186/s40900-018-0137-8en
dc.identifier.doi10.1186/s40900-018-0137-8
dc.identifier.endpage9en
dc.identifier.issn2056-7529
dc.identifier.issued1en
dc.identifier.journaltitleResearch Involvement and Engagementen
dc.identifier.startpage1en
dc.identifier.urihttps://hdl.handle.net/10468/7509
dc.identifier.volume5en
dc.language.isoenen
dc.publisherSpringer Nature Publishing AGen
dc.relation.urihttps://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-018-0137-8
dc.rights© The Author(s). 2019en
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en
dc.subjectStillbirthen
dc.subjectPatient engagementen
dc.subjectBereavement careen
dc.subjectPregnancy lossen
dc.subjectConferenceen
dc.subjectPatient partnershipen
dc.subjectTraining and educationen
dc.titleParents and clinicians: partners in perinatal bereavement research –experiences from the International Stillbirth Alliance Conference 2017en
dc.typeArticle (peer-reviewed)en
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