Key stakeholders' experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review

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dc.contributor.authorO'Shea, Emma
dc.contributor.authorTimmons, Suzanne
dc.contributor.authorO'Shea, Eamon
dc.contributor.authorFox, Siobhán
dc.contributor.authorIrving, Kate
dc.contributor.funderHealth Research Board
dc.date.accessioned2018-09-20T15:53:49Z
dc.date.available2018-09-20T15:53:49Z
dc.date.issued2017
dc.description.abstractBackground: Respite services provide a break in the caregiving relationship for people with dementia and their carers, however they are often under-used and service acceptability can be low. This study aims to understand key stakeholders' experiences of respite services for people with dementia, with a view to informing respite service development. Methods: A systematic search was conducted of the Pubmed/MedLine, Embase, Cinahl, PsychInfo, Scopus, Web of Science, and Cochrane databases (1980-2016, English) with fixed search terms relating to 'respite' and 'dementia', following PRISMA guidelines. Noblit and Hare's approach to meta-ethnography was employed. Key concepts were identified across the papers and reciprocal and refutational translation techniques were applied to primary studies; findings were synthesized into third order interpretations and finally, a 'line-of-argument' was developed. Results: In total 23 papers were reviewed, which described 20 independent samples across 12 countries. The views of 889 participants were synthesized (13 people with dementia, 690 carers, 44 'service providers', 52 frontline staff, 70 managers, 12 volunteers, six academic/policy-makers, and two independent consultants). Five key concepts were identified and outlined i.e. 1) the transition to service use 2) expanding organizational capacity 3) dementia care quality 4) building a collaborative care partnership and 5) dyad restoration. There was broad agreement around the key areas for service development across the range of stakeholders (flexible and responsive person-centred care, meaningful activity for people with dementia, enhanced client-service communication and informational support). However, there was clear divergence in stakeholder perspectives around the barriers to implementation of such developments. Organizational tension was evident between frontline staff and management in respite services, hindering the cultural change necessary to facilitate service development in line with dyad's needs and preferences. Conclusion: Respite services must surmount internal organizational barriers to change, and cultivate a collaborative solution-focused care culture, which acknowledges the centrality of the dyad and their care preferences. Future research should explore the development of alternative/modified community respite service models, which have greater capacity to be responsive to the needs of each individual dyad. The perspectives of people with dementia must be included in research in this area going forward.en
dc.description.sponsorshipHealth Research Board (SPHeRE/2013/1)en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.articleid282
dc.identifier.citationShea, E. O., Timmons, S., Shea, E. O., Fox, S. and Irving, K. (2017) 'Key stakeholders’ experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review', BMC Geriatrics, 17(1), 282 (14pp). doi: 10.1186/s12877-017-0676-0en
dc.identifier.doi10.1186/s12877-017-0676-0
dc.identifier.endpage14
dc.identifier.issn1471-2318
dc.identifier.journaltitleBMC Geriatricsen
dc.identifier.startpage1
dc.identifier.urihttps://hdl.handle.net/10468/6852
dc.identifier.volume17
dc.language.isoenen
dc.publisherSpringer Natureen
dc.relation.urihttps://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-017-0676-0
dc.rights© 2017, the authors. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.en
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectDementiaen
dc.subjectRespiteen
dc.subjectService developmenten
dc.subjectPerson-centred careen
dc.subjectMeta-ethnographyen
dc.titleKey stakeholders' experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic reviewen
dc.typeReviewen
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