Patients’ and communication partners’ experiences of communicative changes in Parkinson’s disease

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dc.contributor.authorJohansson, Inga-Lena
dc.contributor.authorSamuelsson, Christina
dc.contributor.authorMüller, Nicole
dc.contributor.funderLinköpings Universiteten
dc.date.accessioned2019-11-25T20:23:50Z
dc.date.available2019-11-25T20:23:50Z
dc.date.issued2019-01-23
dc.description.abstractPurpose: The aim of the present study was to investigate the experiences of people with Parkinson’s disease and their close communication partners regarding disease-related communicative changes and participation in everyday conversations. Materials and methods: Semi-structured qualitative interviews were conducted with six dyads consisting of a person with Parkinson’s disease and a close communication partner. The interview material was analysed through thematic analysis. Results: The main theme was the experiences of barriers and facilitators for participation in conversations. Subthemes were experiences related to changes in voice and articulation, language and cognition, body language and facial expressions, fatigue, self-image, communicative initiative, and familiarity with conversation partner. The results show individual variation. A change observed in almost all dyads was the person with Parkinson’s disease participating less in conversations. Conclusions: Assessment and interventions should be based on a broad perspective on communication, and individuals’ priorities should be foregrounded in intervention planning. Both the person with Parkinson’s disease and communication partners need to make adjustments for communication to work. Therefore, close communication partners should be included in assessment and intervention of communication in Parkinson’s disease from an early stage.en
dc.description.sponsorshipLinköpings Universitet (Foundation for Parkinson Research)en
dc.description.statusPeer revieweden
dc.description.versionPublished Versionen
dc.format.mimetypeapplication/pdfen
dc.identifier.citationJohansson, I.L., Samuelsson, C. and Müller, N. (2018) 'Patients’ and communication partners’ experiences of communicative changes in Parkinson’s disease'. Disability and rehabilitation, (9pp). doi:10.1080/09638288.2018.1539875en
dc.identifier.doi10.1080/09638288.2018.1539875en
dc.identifier.eissn1464-5165
dc.identifier.endpage9en
dc.identifier.issn0963-8288
dc.identifier.journaltitleDisability and Rehabilitationen
dc.identifier.startpage1en
dc.identifier.urihttps://hdl.handle.net/10468/9220
dc.language.isoenen
dc.publisherTaylor and Francis Ltden
dc.relation.urihttps://www.tandfonline.com/doi/full/10.1080/09638288.2018.1539875
dc.rights© 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.en
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.subjectCommunicationen
dc.subjectParticipationen
dc.subjectDysarthriaen
dc.subjectParkinson's diseaseen
dc.subjectExperiencesen
dc.subjectCommunication partneren
dc.titlePatients’ and communication partners’ experiences of communicative changes in Parkinson’s diseaseen
dc.typeArticle (peer-reviewed)en
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