Key stakeholders' experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review

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dc.contributor.author O'Shea, Emma
dc.contributor.author Timmons, Suzanne
dc.contributor.author O'Shea, Eamon
dc.contributor.author Fox, Siobhán
dc.contributor.author Irving, Kate
dc.date.accessioned 2018-09-20T15:53:49Z
dc.date.available 2018-09-20T15:53:49Z
dc.date.issued 2017
dc.identifier.citation Shea, E. O., Timmons, S., Shea, E. O., Fox, S. and Irving, K. (2017) 'Key stakeholders’ experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review', BMC Geriatrics, 17(1), 282 (14pp). doi: 10.1186/s12877-017-0676-0 en
dc.identifier.volume 17
dc.identifier.startpage 1
dc.identifier.endpage 14
dc.identifier.issn 1471-2318
dc.identifier.uri http://hdl.handle.net/10468/6852
dc.identifier.doi 10.1186/s12877-017-0676-0
dc.description.abstract Background: Respite services provide a break in the caregiving relationship for people with dementia and their carers, however they are often under-used and service acceptability can be low. This study aims to understand key stakeholders' experiences of respite services for people with dementia, with a view to informing respite service development. Methods: A systematic search was conducted of the Pubmed/MedLine, Embase, Cinahl, PsychInfo, Scopus, Web of Science, and Cochrane databases (1980-2016, English) with fixed search terms relating to 'respite' and 'dementia', following PRISMA guidelines. Noblit and Hare's approach to meta-ethnography was employed. Key concepts were identified across the papers and reciprocal and refutational translation techniques were applied to primary studies; findings were synthesized into third order interpretations and finally, a 'line-of-argument' was developed. Results: In total 23 papers were reviewed, which described 20 independent samples across 12 countries. The views of 889 participants were synthesized (13 people with dementia, 690 carers, 44 'service providers', 52 frontline staff, 70 managers, 12 volunteers, six academic/policy-makers, and two independent consultants). Five key concepts were identified and outlined i.e. 1) the transition to service use 2) expanding organizational capacity 3) dementia care quality 4) building a collaborative care partnership and 5) dyad restoration. There was broad agreement around the key areas for service development across the range of stakeholders (flexible and responsive person-centred care, meaningful activity for people with dementia, enhanced client-service communication and informational support). However, there was clear divergence in stakeholder perspectives around the barriers to implementation of such developments. Organizational tension was evident between frontline staff and management in respite services, hindering the cultural change necessary to facilitate service development in line with dyad's needs and preferences. Conclusion: Respite services must surmount internal organizational barriers to change, and cultivate a collaborative solution-focused care culture, which acknowledges the centrality of the dyad and their care preferences. Future research should explore the development of alternative/modified community respite service models, which have greater capacity to be responsive to the needs of each individual dyad. The perspectives of people with dementia must be included in research in this area going forward. en
dc.description.sponsorship Health Research Board (SPHeRE/2013/1) en
dc.format.mimetype application/pdf en
dc.language.iso en en
dc.publisher Springer Nature en
dc.relation.uri https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-017-0676-0
dc.rights © 2017, the authors. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. en
dc.rights.uri http://creativecommons.org/licenses/by/4.0/
dc.subject Dementia en
dc.subject Respite en
dc.subject Service development en
dc.subject Person-centred care en
dc.subject Meta-ethnography en
dc.title Key stakeholders' experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review en
dc.type Review en
dc.internal.authorcontactother Suzanne Timmons, Medicine, University College Cork, Cork, Ireland. +353-21-490-3000 Email: s.timmons@ucc.ie en
dc.internal.availability Full text available en
dc.description.version Published Version en
dc.contributor.funder Health Research Board
dc.description.status Peer reviewed en
dc.identifier.journaltitle BMC Geriatrics en
dc.internal.IRISemailaddress s.timmons@ucc.ie en
dc.internal.IRISemailaddress emma.oshea@ucc.ie en
dc.identifier.articleid 282


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© 2017, the authors. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0  International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. Except where otherwise noted, this item's license is described as © 2017, the authors. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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